Still more evidence that Morgellons disease is most likely delusional parasitosis, 2012 edition

I have just one question: Could the origin of this delusion lie in a problem with the nerve endings in the skin?

I fully acknowledge that there is nothing visibly wrong with the skin, that there is no unusual inflammation or the like. But could it just be that the nerves in the skin send the brain signals that the brain interprets as “Parasites!”? And could one classify that as a delusion?

And Stephen Straus too found evidence that CFS is a psychiatric problem. Or should I say “evidence”. Small sample size combined with confirmation bias can wreck havoc on any conclusion in a psychiatric study I guess.

So color me seriously not impressed that psychiatrists find a psychiatric cause.

Tony Mach – if someone thinks they are infested by parasites and there are no actual parasites, wouldn’t that classify as a delusion? Particularly if they’ve been examined, told that they have no parasites, and they still believe it to be true?
Not to say, of course, they don’t have the sensations consistent with something crawling over their bodies which.

This is very interesting stuff!

Suppose Tony M’s hypothesis is right, and there’s some unexplained nerve problem causing the sensation of creepy-crawlies all over.

When your nervous system tells you something is happening in your body, there’s an overwhelming tendency to believe it really is, because 99.99 percent of the time, your nervous system doesn’t lie.

If you have a phantom limb, you can plainly confirm that it’s no longer there; in that case, you’d be deluded if you claimed it was still attached.

But this is much more subtle. You scratch, and desperately look for anything that might be causing this misery. Little dots appear on your skin — that must be it! For us science types, it’s very persuasive when scanning electron microscopy or whatnot tells you it’s nothing out of the ordinary, but a person who has only a vague idea of how these things work may not find this evidence very compelling. Their nervous system is telling them, plain as day, that there are creepy-crawlies under their skin. What do those propeller-heads know?

I’d be depressed, too, if I felt like I had bugs all over me. Eeew!

So, it seems to me that the study showed that Morgellon’s is not due to an actual parisite or other agent they can identify. But that doesn’t seem to me to imply that it is necessarily psychosomatic.

Oh, brother. Now that the big CDC study’s results have been released, the Morgellons “commmunity” will be itching to attack the big government coverup (there have been rumblings about this for quite awhile).

The fibers are really going to fly.

Wonder whether the Morgies (as they call themselves) are already burning up the phone lines to Dianne Feinstein, Hillary Clinton and other politicians who pushed for this big waste of taxpayer dollars, demanding we sink more money into further studies.

Sadly, all this distraction prevents people who are genuinely suffering with these symptoms from getting the help they need.

Why would the government try to cover this up? As a conspiracy theory it is somewhat lacking in proper motivation, unlike, say, 9/11 inside job or moon landing faked.

C’mon Daniel- if it’s not vaccines, chemtrails, flouride or the CDC, it’s nanotechnology, GMOs or secret government weapons research run amuck! The Internet knows and tells all

http://afteramerica.wordpress.com/2010/06/24/morgellons-victims-across-the-us-and-europe-part-1/

Better keep quiet though or you’ll be “absorbed” like the rest.

I never knew this had a name until now! I have been suffering for 4 years. First occurred in Spring 2008, and I thought it was related to a move to a different city (ie: allergies or something in the house air ducts). Well, we have been back in our original city for a year now and I still have symptoms. Things that make it worse for me include caffeine and wearing nylon clothing. Things that make it better…??? For me it is a tiny itchy spot, about the size of a pinprick, on my skin. Sometimes there is a timy bump or a tiny patch of dry skin and sometimes not. The itch usually feel like a tiny insect bite. Maybe it is tiny pores getting plugged and itching? Lots of sores on my leg from scratching, can’t wear shorts because they look so awful. I sometimes get them on my forearms but mostly my legs.

The itching isn’t necessarily the delusion, the insistence that the itching comes from parasites along with the conspiracy nonsense is what makes it a delusion.

My wife was suffering from something similar: insane itching and burning and “creepy-crawly” sensations. She’d scratch holes in her arms in her sleep, and wake up to find them full of fibers and what-not. Because my wife isn’t prone to delusion or conspiracy theories, and because she understands that “neurological” doesn’t mean “you’re crazy”, she looked into it and found a nerve-ending thingy that had similar symptoms to what she was experiencing. Her doctor agreed, and a generic pill taken once a day has eliminated the problem entirely.

Of course, if you’re convinced you’ve got bugs under your skin, you’re probably going to be unwilling to take a “nerve pill” aren’t you?

Basically, all that was necessary was that the subject be a member of Kaiser Permanente, thirteen years or older, and English-speaking. Cases of Morgellons were defined as any member of Kaiser Permanente who reported during the study period (July 1, 2006 and June 30, 2008) reporting “fibers, threads, specks, dots, fuzzballs, granules or other forms of solid material coming out of his/her skin” AND one or both of the following:

Why didn’t they just enroll anyone who claims to be suffering from Morgellons? It would have been simpler, and would give people less excuse to claim that the subjects weren’t real Morgellons sufferers.

It saddens me that feel like I have to comment on this whenever Morgellon’s comes up . . .

Delusional parasitosis is a real disease. Psychosomatic symptoms are real symptoms, and mental illness is real illness. No one’s accusing Morgellon’s sufferers of being “crazy” or “making it up.”

Delusional parasitosis is a real diagnosis of a real illness that real people really get, and there are effective treatments available.

It’s sad that these people have to go without effective treatment just so some insensitive clods can hold on to their outdated prejudices about mental illness.

The most common histopathologic abnormality was solar elastosis, a degeneration of dermal connective tissue and increased amounts of elastic tissue due to prolonged sun exposure. However, this finding might be expected among a population residing in California

And they did this in the Bay Area? *looks up at the endless fog and clouds*

I think the word ‘delusion’ puts people off. We don’t want to think we’re ‘delusional,’ or that there’s anything wrong with our brains. Which is silly; the nervous system can be compromised just as much as the skin can. There’s no reason that a disorder of the mind should be any more stigmatizing than an infection, IMO.

The pictures I’ve seen of the Morgellons “lesions” look almost exactly like what I currently have covering my right upper arm. Only I know exactly what caused mine. I have stress-induced dermatitis, secondary to OCD and GAD. It’s a pain in the rear and sets up a lovely cycle of itching leading to scratching leading to more itching. But that’s not as glamorous as some mystery disease.

Dawn@21 yes, he took out the double negative ;).

I “foresee” how the results of this study will be interpreted by Morgellons Disease “patients”.

They are going to wrap up a number of conspiracy theories into one grand conspiracy.

The CDC and Big Government are in cahoots with Big Medical Insurance Companies (Kaiser), so that “Big Medical Insurance Companies (Kaiser)” do not cover treatment for this devastating disease.

“Everyone” knows that “Chronic Lyme Disease” is associated with Morgellons Disease and “everyone” knows that laboratories such as Igenex in California can test for “Chronic Lyme Disease” with their LUAT (Lyme Urine Antigen Test). *”Everyone” knows that the CDC and the IDSA do not accept LUATs performed by Igenex as being valid.

**”Everyone” knows that the conspiracy has been documented on the wiki/Talk website.

* LUATs have been tested repeatedly for sensitivity and specificity and have failed repeatedly to meet lab standards for accuracy.

** See http://en.wikipedia.org/wiki/Talk%3AMorgellons/Nielsp

dermatitis artifacta plus or minus thought disorder anyone?

I found recently that SLS seems to make my skin really itchy ( most shampoos, bubble bath products contain it). Is that “psychiatric?”

And then there are some “sufferers” of Morgellons that take it to a completely new level. Vaccines, chemtrails, electromagnetic waves, nanoparticles, self-replicating nanomachines, and aliens are all part of a huge government conspiracy towards transhumanism. And apparently the lint that accumulates at the base of the bristles in your hairbrush are PROOF that you have also been infected with Morgellons.

http://www.morgellonsexposed.com/

Morgellons is obviously bogus, but I can’t help feel a twinge of sympathy for the sufferers. It can be really difficult when you’re having a problem, and the physician you encounter seems to move too quickly to the explanation that whatever you’re feeling is all in your head (and does it in a tone that makes you feel like he’s twirling a finger at the side of his head in the universal symbol for crazy). I do know that some problems ARE in people’s heads, but I’m a techie, and I know how easy it is to blame ‘user error’ when you get saddled with a complex, sporadic and unpredictable problem – and how that judgement can be wrong. It’s super frustrating when it’s your computer, and it’s even more frustrating when it’s a persistent pain or itch or other problem in your body. I don’t know how you get from there to trying to prove it’s alien fibers or whatever, but we all know that people will grasp at explanations, no matter how silly.

@15 … Heather, you have developed a self-perpetuating skin problem. It may have started with dry skin, but you into self-inflicted pain now.

If nylons and caffiene make it worse, quit them.

Use as little soap as possible, as seldom as possible. Shower with nothing more than warm water and a soft washcloth, and use soap only on armpits and groin.

Use a good moisturizing lotion on your legs and arms – wherever the itching is a problem.

If you have an itchy spot, slap it, don’t scratch it.

What about Silvermaven’s comments regarding Morgellons on the Jenny McCarthy thread of December twenty-eighth?

What about it? And what about a link?

“It can be really difficult when you’re having a problem, and the physician you encounter seems to move too quickly to the explanation that whatever you’re feeling is all in your head …”

That’s exactly what happened to my father. Early 1960s, Freudian psychoanalysis raging through the medical community like a hurricane, genetic testing unheard of. The poor man was at the end of his tether with invisible ‘insects’ ravaging his hands and arms. So his ‘treatment’ consisted entirely of exhortations to disclose and face up to all his sexual ‘hangups’. (Two of our GPs were well advanced in getting their psychiatrist qualifications.) Seeing as he didn’t even like to talk about his day at work, this was not an opportunity he seized upon with glee.

We may not now have that particular silly notion about psychological underpinnings of problems, but the leaping to conclusions about ‘stress’ and a ‘busy life’ being the source of symptoms can be disheartening for patients with less-than-obvious conditions.

If you verify that the “fibers” are merely normal fibers one is surrounded by, and that the lesions, sores, and crusty material is all caused by itching (and these cause the fibers to adhere), then what do you have left?
Itching and dermatitis primarily from the sound of it.
And itching and dermatitis can have many, many causes.

@46, Actually, if you’re motivated enough, reaching that spot between your shoulder blades is a lot easier than you’d think. I once gave myself a lovely set of scrapes by using a butter knife to reach those spots. I itched so much I would have used sand paper if someone had told me it would help.

I know all to well how bad itchiness can really get. Despite keeping my nails so short that they’re only a millimeter or 2 long, I have often scratched until I bled. But, unfortunately, I also know all to well that there are no magical solutions. I doubt I’ll ever be cured of my skin issues, but I have learned to manage them. Which means it’s a perfect condition to breed woo in those prone to it. Complex causes, no cure, and many doctors simply having to shrug and say “It is what it is.”

The conclusion of this study was completely inappropriate – trying to blame the suffering because 50% had drugs detected in their hair. This isn’t fair because the suffering of this condition can lead to patients obtaining prescription of drugs such as opiates and benzodiazpeines. And the medical journal made it pretty clear they were suffering when you dig into the details.

Many had infection, markers of inflammation, and a positive ANA. Some others had markers for possible Hepatitis C virus, Hepatitis B virus, and some other infections. This study was a small sample size of only 40 patients, but they seemed to find quite a lot of abnormalities in my opinion.

Furthermore, how did they determine that the cellulose fibers they found is consistent with cotton fibers? Is this really possible? If not, the authors should have made it clear that they could not determine exactly what the fibers were or their origin. Cellulose fibers can be from a number of things. For an example, some species of bacteria secrete cellulose to create biofilms. That’s just one example, and I am not saying that is what is happening.

The data obtained from this study really isn’t too bad, It would have also helped to provide a table of comprehensive data obtained from infections, lab results, and inflammatory markers to get a better idea of how many total are suffering with something detectable and how many have co-morbid conditions. I would have liked to see more inflammatory markers looked at instead of the non-specific CRP and ESR.

Parts of the conclusion is horrendous and inexcusable in my opinion. It feels as they are trying to convince the reader that the people in the study are drug addicts.

However, this study has made it clear that that at least a portion of these patients may be suffering from something that is detectable, and it’s not “all in their head”. Furthermore, even with absence of laboratory evidence of anything they tested for, calling people delusional (especially when some have sores on their back they can’t even scratch themselves) does not seem appropriate. No matter what the condition is, or what you want to label it, all of these patients are suffering, and deserve compassionate medical help. And just because they couldn’t find a single shared laboratory marker among all patients this study doesn’t mean the disease is not real. It means they couldn’t find a shared laboratory marker based on the ones they chose for the study.

We must keep in mind that these patients have chronic problems and publishing articles calling them delusional and crazy doesn’t seem to be making them disappear. So instead of blaming the patient for their illness, I think it would be more appropriate to explore ways to help them. And saying, “You are delusional, take this drug” isn’t the type of care I am talking about. That approach would be insulting to anybody.

“We may not now have that particular silly notion about psychological underpinnings of problems, but the leaping to conclusions about ‘stress’ and a ‘busy life’ being the source of symptoms can be disheartening for patients with less-than-obvious conditions.”

Yes, that’s exactly what I mean. It seems as though nearly everyone* I know who had a difficult-to-diagnose problem which did, ultimately, turn out to have a Proper Scientific Name, was told somewhere along the path to a diagnosis that it was probably stress-related and told to quit caffeine and get more sleep. Which isn’t awful advice overall, but not particularly relevant if the problem is pernicious anemia or whatever. Again, I’ve certainly been guilty of this myself in my non-medical diagnosis of why people’s computers were misbehaving, so I don’t mean this as some sort of sweeping indictment of the medical profession or medical professionals. It’s a human tendency, to want to wave away anything inexplicable and difficult. It just really sucks from the patient’s point of view, and when it meets up with susceptible individuals probably feeds all kinds of woo.

* anecdote, hyperbole, confirmation bias, but still

@50. Reaching it isn’t so hard, but try scratching it. Not easy.

Reaching it isn’t so hard, but try scratching it. Not easy.

No particular difficulty here. Then again, I’m not exactly Charles Atlas.

I’m just delurking to say that I now have an itch between my shoulder blades. You bastards.

They are not saying anything even vaguely similar to what you claim, and in fact are pretty close to your own argument.

It’s not necessarily what they say, it’s how the information is presented. It seems that the study authors thought it was important to talk about drug use many times over in the study. It reads as if they have a bias that it’s drugs.

They mentioned that 12% had a history of substance abuse for example. What substances? Does marijuana count as substance abuse, because that wouldn’t be too surprising among California residents. The study doesn’t say. How does this compare to the normal population? How does this figure compare to others with debilitating chronic conditions? A quick search, and I found a study that found 19% of people with multiple sclerosis (PMID: 14760950). Among the normal population, about 6% of Americans abuse drugs. Illicit drug use in the United States was 8.3% in 2006.

http://www.drugabusestatistics.samhsa.gov/nsduh/2k6nsduh/2k6Results.cfm#Fig2-1

So the study says that 12% of the patients had a previous history of drug abuse. How many were still doing drugs? Anyway, even with the small sample size, the number is by no means high and seems pretty consistent with the normal population. Of course you would need a larger population to determine if these people are more prone to drug abuse.

Many had infection, markers of inflammation, and a positive ANA. Some others had markers for possible Hepatitis C virus, Hepatitis B virus, and some other infections. This study was a small sample size of only 40 patients, but they seemed to find quite a lot of abnormalities in my opinion.

Many patients, and their physicians that treat them do not call the fibers parasites. They simply call it fibers coming from their skin. Of course, some patients may hold a belief that their fibers are a parasites, but it was already common knowledge the the fibers could not be identified.

Read the bloody paper, for crying out loud. They describe it. Also, you might want to check a dictionary. “Consistent with” is not the same thing as “definitely is.” IOW, the fibers provide no evidence of anything out of the ordinary since they can be credibly accounted for as coming off cloth.

I slipped up with words when I was writing quickly, but thanks for pointing out my mistake. Yes, the fibers could be accounted for coming off of cloth, but as far as I know, you can’t prove that it is. Randy S. Wymore Ph.D. from Oklahoma State University has been doing FTIR spectroscopy for years with several different forensic labs. The fiber from Figure 7 looks completely consistent with a Morgellon’s fiber. I will give them that. However, I remain very skeptical that they could determine it was most likely a cotton fiber. Fiber pulled off of clothing or a cotton swab isn’t visually consistent with the Morgellon’s type fiber under a microscope. They look completely different. Of course, I can’t provide a citation here because I’m not sure if they exist beyond power point slides and drafts.

BS. You are quite clearly trying to claim that some such IS happening. Your protestation to the contrary is completely unconvincing.

I am not claiming such a thing is happening. I find the evidence that these fibers are from clothing as unconvincing. If so, one could take a piece of scotch tape, pull some fibers off of clothes, and show that it is consistent with a Morgellon’s type fiber. I agree that I am probably unconvincing since there is not published medical literature to back up what I am saying. I understand that when I can’t support what I say with published medical journals, my words will be taking with lots of skepticism. That’s ok.

Since we’ve already established that you didn’t bother to read it, why should we pay any attention to what you think is “horrendous and inexcusable” when you made it up?

I do think all the drug data is inappropriate as I already explained above.

I don’t have time to respond to each thing at this point, so I’ll stop here for now.

@54, As I’ve noted, I once did some impressive damage using a butter knife to reach. But if some people can easily reach their entire back to scratch with their finger nails, lucky them. (Or maybe not. My worst trouble spots for perpetuated itching are the ones I can reach easily with my nails).

For whatever it’s worth, I can reach and scratch all of my back. My joints hyper-extend, which seems to make it easier.

adelady @ 4, you are nearly convincing me to get tested for CMT (my mother has it). I didn’t realize itching was a symptom.

@Pseudonym:

If Morgellons fibers aren’t textile fibers, but are produced by the disease, then send samples to people who are experts in that sort of thing; they’d be delighted to be able to publish a paper about something totally new.

Yes, the fibers could be accounted for coming off of cloth, but as far as I know, you can’t prove that it is.

The burden of proof is on those who say the Morgellon’s fibers do not come from a conventional source to demonstrate that the fibers cannot be common textile fibers. If I claim that I was aboard an alien spacecraft, and as “proof” I offer a jug of a mysterious clear liquid supposedly not like anything found on Earth, I’m the one that needs to demonstrate some way that the liquid doesn’t act like plain ol’ water – it’s not up to everyone else to run every single conceivable test to prove that it does act like ordinary water and therefore probably is.

This is somewhat off topic but not entirely. In my work I have for years received countless insect bites usually from carnivorous flies I think but am not sure because they are so small. They itch like the dickens (the bites you never feel the flies on you or when they bite you). The only thing I have found that seems to relieve the itching to a reasonable extent is very hot water applied liberally, that is showers so hot they are nearly painful. But it works, the itching is ameliorated for up to a few hours.

My question is, why does this work? It might possibly be of benefit to others who suffer from non-specific itching as well. It can be used to counter the itching induced by plant secretions (such as poison ivy) but care must be exercised to completely remove the oils that cause the reaction first, that is copious amounts of soap and water on the affected area to begin with.

The brain is an organ, and is subject to imperfections and malfunctions, as are other organs. “Delusion” sounds bad, to laypeople. But it’s a symptom, and one that can be addressed as such. I hope that if someone described an anxiety disorder, you wouldn’t insist that the doctor who had diagnosed them was blaming the patient by giving them a psychiatric diagnosis.

I agree. However, I don’t know if I agree that the brain is completely responsible for the symptoms of Morgellon’s. In my opinion, Morgellon’s looks like a form of Chronic Fatigue Syndrome and/or Fibromyalgia with something causing skin symptoms. Patients with these syndromes are often told by their doctor that they are suffering from anxiety or depression. Sure, these are just symptoms, but just because these are symptoms of the illness doesn’t mean they are the cause. And there can be organic causes of anxiety and depressive disorders, so you can’t assume these are always caused by mind/thoughts.

And yes, many with conditions such as Chronic Fatigue Syndrome and Fibromyalgia are still mistreated by much of the medical community and hospitals. Some of the patients that are mistreated are severely sick to the point they are bedridden. They may present seizures, infection, inflammation, hypercoagulation, panic attacks, orthostatic intolerance/syncope, and more, but they are still a target of disbelief for some reason that I don’t understand. Some of the more severe cases can look a lot like a SLE patient. I’m sure some here are going to try to deny this statement, but it’s the truth.

And once one gets written of as having having a “mental disorder” by “ruling everything out”, many doctors refuse to do further testing. I think this study makes it somewhat clear that even if Morgellon’s is not real, they may have other conditions or autoimmunity causing or contributing to much of their symptoms. If I remember right (and someone can correct me if I am wrong), the study failed to mention how many patients were previously diagnosed autoimmune conditions since there was a fair number if positive ANAs. It would have been a lot more interesting if they measured a number of specific inflammatory markers and immune markers instead of non-specific markers such ESR and sed rate. I guess the budget prevented them from doing this.

Skeptics in the medical community seem to jump to very quickly to anxiety/depression explanations when they can’t quickly identify a problem. I’ve never understood how a skeptic can be so skeptical about everything, but so willing to jump to psychosomatic explanations at the sound of the gun without any evidence to support their assumption. It seems to me that many doctors/humans just don’t want to admit when they don’t know.

Oh, and what’s the average time it takes to identify the cause of a chronic illness? Has there been any other chronic illnesses that were at one point was target of disbelief amongst the majority? Right.

I can assure you that I need no psychiatric help. I had a physician who left me go when I first went to him in 04 with some of the issues I was experiencing. Looking back on those early days I can understand how I must have sounded. This disease is very scary when you first start seeing and feeling symptoms. After I was diagnosed as psychotic by the second one, like most with this disease I started keeping my mouth shut.

You will have to overlook my ignorance on some things as I’m not a doctor or a scientist but I lost my innocence that doctors knew everything when my dad got cancer 12 years ago followed by mom with alzheimer’s. Mom lives with me and she has this disease as well. When I came down with this disease my son and I lived in an apt. not with my brother and mom. Mom wouldn’t have had the ability to think she had anything, she just got it like my brother did. He’s a veteran and could probably go to the VA but he chooses not to see anyone about this as we know there is no help. I don’t know how they got it, but the person whom I believe gave it to me was in there home a lot during my father’s illness.

I’m saying that this disease no matter what name you want to put to it is very real. Your assuming I need psychiatric help and you don’t know me or what I’ve experienced. In the beginning I did think I was crazy, but the psychiatrist told me to tell my doctor to check all physical problems before diagnosing me as psychotic and gave me a clean bill of mental health. There are more psychiatrist helping people with this disease than doctors.

If the disease is real, than the reports that this has to be all in our heads is a false one. That’s what I’m saying. Most doctors don’t have a clue what this is or how to treat it. Some do try but with my son’s doctor he was waiting to see the report from the CDC to know how to proceed. I wonder what he’ll think now? This report is a damaging one for those of us that just want help to get our lives back.

I have no creams nor take antihistamines and never did, nor do I have a dermatologist. I saw one who looked at my skin and talked into his recorder that I had an unknown etiology. My mother’s doctor mentioned that my mother has some unusual skin symptoms. I said nothing, I know better. I do believe that there are many people who are desperate enough to try many things to relieve symptoms. This is kind of understandable to me and not crazy. There could be a few really crazy one’s who don’t legitimately have this disease. Most people are like us. We lived a normal life like everyone else who contracted a bizarre and frightening illness through no fault of our own.

Do you think Joni Mitchell or Billy Koch are psychotic too? His symptoms cost him his pitching career. Why is T Boone Pickens donating to the cause? Is he nuts too? I don’t know him, so I can’t vouch for him but often wonder why he’s involved.

Many are intensely itchy, like my son. He tries his best to live some kind of life as he is young and getting married in the fall but he can’t lay down and sleep more than a couple of hours without waking up intensely itchy. He can’t rest day or night, this is heartbreaking for me as we all need to be able to rest. He’s been to the Cleveland Clinic and tried all the creams and antihistamines they don’t work. He never mentions this disease, we all learn not to.

We get this disease somehow, so to reassure the public that there is nothing contagious about it is wrong. I wish all the energy trying to make us sound crazy would be spent in assuming for a minute it’s real and what could cause this to happen. If you don’t think I make sense, the man who was pointing to his head about how mentally ill we are has no authority to speak at all. Why was he on fox making judgements like that. Maybe he should listen to those patients he says have come to him for help instead of dismissing them. I read above that it is up to us to prove this exists, but it’s hard to do that when your dismissed. This long overdue report means nothing to me. I read it best I could, but it’s pretty vague and shows no real understanding of this disease. There are many fibers involved and not a cotton fiber that may or may not have come from the environment.

This disease is not about picking at one’s skin. The lesions are made from what comes out. My sister in law is a pharmacist in Columbus and long before we knew anything about morgellons she told my son that his bumps looked like they came from the inside out. Your all entitled to believe as you wish, but I thought this was a site where people had open minds. There is no disease like this one. The various fibers were compared to all other known fibers by Dr Wymore and none matched. He himself was a skeptic, but to his credit he took a look and realized that this was indeed a real illness.

So if I’m reading Vasha @48 correctly, the study doesn’t actually accomplish anything. The people who already thought the condition was psychological have their belief confirmed; those that believed it was physical are shown wrong, but by the nature of the condition won’t change their minds.

No, wait, I take that back; it may at least prompt some action against the “quacks” Orac mentioned, if not by the FDA then by the insurance companies who may have been paying for the treatments.

Marilyn,
No one says that the symptoms are all in your head. The current best evidence does say:
– there’s no evidence of a parasite, particularly a common parasite to Morgellons cases.
– the best current evidence is that the fibers reported are picked up from the environment and do not come from inside the body.
If you have good evidence to the contrary, please work with someone in medical research to properly document and analyze it.
I am not a doctor, so won’t try any kind of diagnosis. Your family really should see a dermatologist or two to try to deal with your sores, rash, and itch.

“You will have to overlook my ignorance on some things as I’m not a doctor or a scientist but I lost my innocence that doctors knew everything when my dad got cancer 12 years ago followed by mom with alzheimer’s.”

Is this the genesis of your distrust of physicians?

“Mom wouldn’t have had the ability to think she had anything, she just got it like my brother did. He’s a veteran and could probably go to the VA but he chooses not to see anyone about this as we know there is no help. I don’t know how they got it, but the person whom I believe gave it to me was in there home a lot during my father’s illness.”

Why hasn’t your brother sought help from doctors at the VA?

Are you now stating that Morgellons disease is communicable?

“I have no creams nor take antihistamines and never did, nor do I have a dermatologist. I saw one who looked at my skin and talked into his recorder that I had an unknown etiology.”

I find it incredible that creams and anti-histamines were never prescribed for you by your primary care physician or by a dermatologist. Or, were they prescribed and you did not not take your physician’s advice? Try looking up “histamines”, “histamine blockers” and antihistamines. See Wikipedia “itch” for some simple explanations of what causes “itch” attributed to both physical and mental disorders.

I’m sorry for the double post, I don’t know how it went through twice and I don’t know how to remove it. I can see that there’s no need for me to post to try to inform anyone of what’s really going on with this disease. I thought someone might be interested. I take care of my mom 24/7 but would be glad if I knew of a scientist who wanted to do a study and was looking for volunteers in my area.

There is research in Oklahoma by Dr Wymore, but I don’t think it’s well funded. Pickens will match any donation however. I guarantee you the few lesions I have had come from the inside out. This disease has been referred to as a skin disease which is inaccurate. Yes, you see evidence of scratches bumps but this disease causes a lot of harm on the inside as well. My doctor now just can’t understand why my lungs don’t sound clear. Not everyone has a lot of skin symptoms, I don’t nor does anyone in my family. If I were to prove that these fibers are some kind of organism or parasite, then all I need to is rub something oily on my skin and a few would surface and in my case would be black. I could then put them in some water and you could watch them with a magnifying glass swim around. As far as I know, carpet and clothing fibers don’t do that except maybe make a few bubbles as you would put them in water. They don’t seem to need air either as I found several lengthy ones in my shoes in storage and were very much alive. Sounds strange, but then how do you think those of us who have this feel! This is very frightening when it first happens, then you learn to live somehow.

As I said before, there are many types of fibers. Some are colored some look like clear plastic and are more lengthy. I’ve seen many black fibers over the years come out of my skin which feels like a pinch twisted around in a ball of different colored other fibers. There there are one’s that are black and white but twisted and more common with me. If you spray one with a little vinegar, a milky white worm will emerge which is why this disease was named morgellons.

I don’t appreciate being told to be good and go to my dermatologist and keep putting my creme on. I stated before, I use no cremes and if a dermatologist even knowingly doesn’t understand what he see’s, then it’s just dermatitis. I used to be naive as well until I found I had something out of the normal and the reaction you get when this happens. I’ll leave you all to your discussion as it seems no one will consider what I say is possible. Good thing I didn’t say anything about any more of what I’ve experienced. I doubt you could handle it. The CDC did a small study in one area of the country with minimal testing and concluded we are mostly drug addicts with mental problems and you should definitely believe them because they’ve never been wrong before!

Our group includes doctors who are familiar with tropical parasitic diseases, but they weren’t the people who were treating our African patient with onchocerciasis.

I think that the Morgollon’s promoters helped prolong this patient’s discomfort by reinforcing the impression among doctors that people who report creepy-crawlies under their skin are invariably crazy. However, there are millions of people in the world who do have worms crawling under their skin, and we have a duty to stay alert for them.

As a person who experiences chronic, serious itching as a result of a mental illness, I think I’ve been insulted by both Pseudonym. Anxiety disorders aren’t simple moods or thoughts. They are real physical conditions, which often do have physical symptoms. In fact, Generalized Anxiety Disorder can not be diagnosed without the presence of physical symptoms.

To imply there MUST be something going on besides a mental illness is insulting to every person with a mental health issue, because you’ve just implied that our diseases aren’t real.

Tony Mach @ 2:

Because this just reminds me so much of CFS and Fibromyalgia, where all kinds of explanations were put forward for the increased levels of fatigue and pain in the patients, from “false illness believes” to “central sensitization”. After all, in both CFS and Fibromyalgia there was “no clearly definable physical cause” as well.

Have you been keeping up with Dr. Frederick Wolfe’s findings?

Dr. Frederick Wolfe, the director of the National Databank for Rheumatic Diseases and the lead author of the 1990 paper that first defined the diagnostic guidelines for fibromyalgia, says he has become cynical and discouraged about the diagnosis. He now considers the condition a physical response to stress, depression, and economic and social anxiety.

”Some of us in those days thought that we had actually identified a disease, which this clearly is not,” Dr. Wolfe said. ”To make people ill, to give them an illness, was the wrong thing.”

It’s not that I distrust Drs, it’s that I’ve lost my innocence that they are able to always fix what is wrong or have the knowledge about all illness that exist. The doctor can take my blood but I’ve learned that the lab only looks for things they know about and the rest of the debris which could be important in the diagnosis is ignored and the tests come back as negative.

I do not know if parasites are the cause of the disease as so far no one knows what the cause is or how to treat it. Did the fibers come first or are they a byproduct. I’ll stick with what I said in the beginning that it makes no sense to me that this report was put out making a point to make us all look like stressed out, skin picking drug addicts. Many are professionals, nurses, doctors, biologists, chemists, celebrities.

For some who asked, there have been studies done. I mentioned Dr Wymore because of the fibers he sent to the crime lab which were sent to him from people who have morgellons. I’ll repost part here, it’s from Wikipedia.

“Wymore sent samples of fibers, none of which collected by biopsy, to the Police Crime Lab in Tulsa, Oklahoma, for analysis. A forensic scientist at the Tulsa Police Crime Lab in Oklahoma searched the FBI’s national database, but the Morgellons sample did not match any known fiber in the database.[13] Lab director Mark Boese said the fibers were “consistent with something that the body may be producing,” adding, “These fibers cannot be manmade and do not come from a plant. This could be a byproduct of a biological organism.”

Did the Kaiser report say if they found any other fibers besides a white cotton one? If not, I have to question there testing methods and if they were trying to find a disease or cover one up. Why do I say this, because I know the disease exists and it wouldn’t be hard at all to prove it. If one of you came to me right now and saw what I see, you probably would question your own sanity as I did at first. I wonder if any of you have actually read what the other side has to say or studies they have done if it’s possible to be unbiased.

@89 Marilyn “I know the disease exists and it wouldn’t be hard at all to prove it. If one of you came to me right now and saw what I see”.

Perhaps you Marilyn could make arrangements to go to Orac or a someone he recommends for a second opinion?

It should indeed not be too hard to evidence that you have fibers growing out of your body. I would be willing to accept what he or his colleagues diagnose, would you?

I’m a bit familiar with some of these so-called LLMDs (Lyme-literate Medical Doctors) and at this point I would welcome all willing physicians to take on this nonsense and put a stop to it once and for all. The LLMDs can make claims about countless pathogens which are undetectable forever, but for them to assert that fibers visible to the naked eye are growing out of their patients bodies should be easy enough to (dis)prove.

These outbreaks of Morgellons seem to be following a specific set of medical practitioners from Texas to California. It will be interesting if the next outbreak is in the Washington, D.C. area.

Who else can help settle this Morgellons mystery once and for all?

@ Fred: Orac is not a dermatologist or a psychiatrist. I’m certain that Marilyn and other patients who claim to have fibers, worms and detritus growing out of their body, have in fact, been referred to dermatologists and/or psychiatrists, yet they do not follow any of the advice about itch relief or seek therapy for their other issues.

About LLMDs…see my post at # 29 above. See also how Igenex Labs in Palo Alto California is mentioned on all the Morgellons disease blogs. The LLMDs practice quackery based on the false premise of “chronic Lyme disease” and the results of LUATs (Lyme Urine Antigen Tests) performed exclusively by Igenex laboratory.

Many, (but not enough, IMO) of these LLMDs have lost their licenses because of their “treatment” of “chronic Lyme Disease) with long term IV antibiotics or the so-called “pulsed IV treatment protocol”. Their patients have had septic infections from this prolonged or pulsed IV therapy. Other patients of these LLMDs have undergone HBOTs prescribed and administered by these quacks.

Yes, these LLMDs have “expanded” their patient base to include Morgellons disease patients…never let it be said that quacks don’t recognize an opportunity to expand their business.

“I am curious about something. When a patient is sick, tests positive for Lyme Disease, does a short course of antibiotics, does not improve, does not undergo a LLMD-approved treatment like long-term IV antiobiotics (or whatever else they recommend), and does not improve, yet still tests positive for Lyme…”

Hmmm…Are you referring to patients who actually had Lyme disease? Lyme disease is a clinical diagnosis based on history of a tick bite, or living or traveling to a Lyme disease endemic area in addition to a screening (ELISA) blood test to test for antibodies and a “confirmatory” Western Blot blood test. The appearance of a unique expanding rash (erythema migrans) is considered “diagnostic” for the disease and warrants a short course of antibiotics without waiting for the results of a blood test.

If early symptoms (rash) and flu-like symptoms are not detected by an individual and not treated with oral antibiotics, later symptoms such are joint swelling (knee joint in particular) facial nerve palsy, radicular neuropathy, meningitis and/or 2nd or 3rd degree heart block may appear. Many of these symptoms are treated as well with oral antibiotics, occasionally with a short course of IV antibiotics. The only symptoms that are treated solely with IV antibiotics are central nervous system symptoms and 2nd and 3rd degree heart block. BTW, during all the years I worked in a County Health Department located in a Lyme disease endemic area, I only recall one case of Lyme disease-related heart block which was treated along with the patient’s Lyme meningitis with IV antibiotics. The patient required a temporary cardiac pacemaker and recovered completely after 28 days of IV Rocephen.

“…if ‘Chronic Lyme’ is a false premise, then what term should be used in a case like that?”

The term is Post-Treatment Lyme Disease Syndrome. See CDC website:

Post-Treatment Lyme Disease Syndrome

if ‘Chronic Lyme’ is a false premise, then what term should be used in a case like that?

“Not understanding serological testing,” I believe.

@92 Some Morgellons experts also have a track record of scientific misconduct, dismissals from University employment and falsifying medical studies.

The Morgellons claims of these same experts should be easy enough to evidence or disprove. As a patient, I am asking that the responsible medical community take swift action to accept their claims (doubtful) or stop these practitioners from endangering more lives.

*ttp://sfappeal.com/news/2012/01/sf-doctor-cries-foul-on-cdc-report-suggesting-skin-disease-is-imaginary.php

*ttp://www.statesman.com/blogs/content/shared-gen/blogs/austin/health/entries/2012/01/26/no_known_medical_cause_for_ick.html

“Raphael B. Stricker, M.D., University of California at San Francisco.
An investigation conducted by the University found that Dr. Stricker falsified data for a manuscript and a PHS-supported publication reporting research on AIDS.

In the manuscript, Dr. Stricker selectively suppressed data that did not support his hypothesis, and reported consistently positive data whereas only one of four experiments had produced positive results. In the publication, Dr. Stricker reported that an antibody was found in 29 of 30 homosexuals, but not found in non-homosexuals.”

See footnote #28 at: *ttp://en.wikipedia.org/wiki/Scientific_misconduct#cite_note-27

(My comment did not post yet. In case it is due to the links as being possible spam, I have replaced the “h” of “http” with an “*”. )

The Morgellons enigma mystifies orthodox science. Dis-eases and dis-comforts of the body which orthodox medical science cannot answer are called illnesses “that exist only in patients’ minds”.
However, one should be aware science cannot tell us where our Awareness goes when we sleep, or why some people get certain diseases and others don’t. Medical science is good for bullet wounds and placing casts on broken bones.
Science knows almost nothing about the mind-brain-body connection. Thus, any disease they cannot understand, they say is “in the patient’s mind”. Yet science hasn’t studied the mind, they have only studied the brain. Their lack of True Knowledge means they can only treat dis-eases or dis-comforts of the body with chemical pills.
As the secret underground Desposyni Church ’s last Eldest Brother, I have access to 10,000 years of records that contain the mysteries of the brain and DNA, as well as the history of our universe and solar system.
Our 1,981 year long vow of silence has ended. We can now say these ancient records contain a series of healing techniques that can cure all human body diseases. The same healing techniques that have been curing cancer people of cancer can cure Morgellons.
The Desposyni Church http://www.DesposyniChurch.org was founded 1,982 years ago by the 6th Chosen One of our 8,000 year Lions of Jud-Ah lineage of healers and teachers. JBP, or the one people call Jesus, was also the 8th Chosen One of our 10,000 year old lineage.

The Morgellons diagnosis should be easy enough to evidence in a controlled environment. Dr. Stricker and Ginger Savely claim that their patients have these creatures crawling out of their bodies – visible to the naked eye. There should be absolutely no reason why such claims cannot be quickly and easily evidenced. Really, how hard can it be and how much must something so seemingly simple to (dis)prove cost?

These claims are on a different level than their chronic Lyme disease opinions. This time they are outright claiming these creatures are readily visible, no hiding, no cyst or biofilms blocking their presence.

The responsible medical professionals need to challenge their claims and put an end to this controversy. If they are indeed quacks feeding or creating paranoid delusions in patients, then these quacks must be stopped – charge them, prosecute them and let their ass rot in jail for such gregarious acts of patient exploitation.

Ever notice how it’s never enough for the woo types to have access to treatment that alleviates symptoms, or manages an issue. There must always be a ROOT CAUSE, and if they can determine the ROOT CAUSE, then they make the issue go away.

@ pseudonym: The sensitivity for Lyme ELISA tests is high…that is why a positive ELISA specimen is automatically tested using the Western Blot for its high specificity. The LUAT performed at Igenex laboratory is a bogus test, as is Lyme serum PCR test developed by Dr. Lee…he of most recent infamy for his claim to have developed Serum rDNA PCR tests for the presence of HPV virus in the serum of girls who received HPV vaccine. See:

Oh, no! There’s DNA in my Gardasil! Or is there (RI September 6, 2011)

There are many more blood tests performed during a work-up for Lyme disease, such as RF (Rheumatoid Factor) Sed Rate, etc. The diagnosis of Lyme meningitis is considered with paired serum-spinal fluid submitted for ELISA testing…along with pleocytosis in spinal fluid.

A group of “supposed chronic Lyme disease patients and their doctors”, convinced the attorney general in Connecticut that the IDSA (Infectious Disease Society of America) Guidelines for Treatment of Lyme Disease was wrong and that it impaired their ability to have insurance companies reimburse them for treatment of “so-called chronic Lyme disease”. The IDSA Guidelines for Treatment are somewhat different that Lyme disease Surveillance Case Criteria. Attorney General Richard Blumenthal used his office to bring suit against the IDSA, and an independent panel was convened. See:

Final Report of the Lyme Disease Review Panel of the Infectious Disease Society of America (IDSA)

It is a rather extensive review and extensive report. The IDSA Guideline for treatment of Lyme Disease, following the report from the independent committee remains in place and remains as the gold standard for treatment of Lyme disease.

The committee during its deliberations, determined that “chronic Lyme disease” is a bogus diagnosis, the existing blood, spinal fluid and synovial fluid laboratory tests are the only valid laboratory tests to confirm the presence of Lyme disease and to monitor the treatment of Lyme disease. The committee also confirmed that prolonged IV treatment or pulse IV Treatment…the so-called Burrascano protocol is not valid and is dangerous, HBOT and other CAM/alt treatments are useless and dangerous.

What more proof would “chronic Lyme disease patients” and their doctors require to prove that their “theories” and “treatments” are pseudoscience, voodoo medicine and totally bogus?

I know the disease exists and it wouldn’t be hard at all to prove it.

This always seems to translate into “I want someone else to do the work”.

@MI Dawn: In general, I don’t think anyone simply “decides” to be sick, as in “wants” to be sick, regardless of the real cause of their symptoms (psychological or otherwise). People want to feel well, some people, however, have mental or physical limitations that interfere with having a healthy lifestyle and outlook.

Oftentimes, the cause of a patient’s symptoms are overlooked by numerous physicians. When patients get readily or rudely dismissed, it is understandable that they seek relief elsewhere. Part of the problem is that this search for wellness all too often leads them to the offices of bogus providers who make lots of false promises and are quite skilled at selling hope for a heck of a lot of money.

When people become confused, desperate for help and in pain, they become willing to try almost anything to gain relief. If you were to put me on the medication and herb regimen some of these LLMDs prescribe, even I’d likely be seeing worms crawling out of my body within no time. If physicians would stop throwing cocktails of drugs at their patients I bet a lot of these mysterious illnesses would resolve.

Tina B- scroll up a few comments until you see one by Phoenix Woman.

There is no such disease. The doctor who named the problem “fibromyalgia” did so because he thought that giving this nebulous (and psychosomatic) “syndrome” a scientific, physical-sounding name, that the patients would more readily take up treatment for it, and get on with their lives.

So resistant are certain people to the idea that psychiatric disorders are real, and painful and limiting, that any hint that they too may have a psych disorder is met with “I’m REALLY ill, I’m not CRAZY!”. Not only are these people (see the morgie Marilyn who has refused any prescribed medication or ointment, because she “knows” they won’t help, she “knows” it’s parasites) setting back their own treatment and recovery, they’re stigmatising and judging anyone with a psychiatric illness that causes them pain, anything from depression to schizophrenia. It’s disgusting, it’s ableist, and definitely a case of “Cutting off your nose to spite your face”.

That’s how “fibromyalgia” came to be invented. A label to pin on patients with somatisation disorders who were totally resistant to psych diagnoses, with one test, a test that would produce positive results on virtually any human being, the “pressure point test”. A test where the diagnosing physician is instructed to jab at certain areas of the body with so much force that their fingernails blanch. Ouch.

So now, the inventor of “fibromyalgia” will talk to anyone who will listen about delisting it, about getting rid of the stigma about mental illness, rather than giving certain mental illnesses special names that make them sound physical, about educating patients rather than encouraging false belief systems. He believed his made up diagnosis would die out with his recovered patients, but instead it has become a folie d’internet, a “madness of the information age”, spread from messageboard, to forum, to support group memetically.

Phoenix Woman – have you noticed that mentioning his name has one of two effects? Either the person claiming “disease X must be real, because it used to be said that fibromyalgia wasn’t real!” will disappear, OR it causes a sort of word blindness, whereby posters pretend the bad words were never said, that there’s no way they are “crazy”.

Hmmm, that’s an interesting website: cycling, tax relief, alien photos & area 51….

Tanya, step back & think carefully about what you’re saying here. My humble little blog (with a focus on evolution & biology education, & critical thinking) gets regular visits from folks who appear to come from the US military, some pharmaceutical companies, etc. I strongly doubt this is because the military or the companies are ‘professionally’ interested in what I have to say – more likely, some of their employees read it for fun or edification. Certainly I’ve been a repeat visitor to a number of ‘woo’ websites – & it’s not because I take what they say seriously! It’s just that they’re such good blog fodder. I may have to add Mr Carnicom’s site to my list…

The other thing is, have you considered how many people would have to be in on this conspiracy that you’re spinning? How likely is it, really, that they’d all keep quiet about it? Really?

You wouldn’t be trying to deter people from checking it out, would you?

Alison’s obviously part of the conspiracy!!!

BTW, a link to Carnicom’s site would have been very helpful, but you didn’t provide one.

You wouldn’t be trying to deter people from checking it out, would you?

I too visited the Cornicom website…located at Cornicon Institute.org

Under the “Research-Search” section I found exactly what Alison found.

Where is this “institute” actually located Tanya? They are a not for profit charitable organization, with no address, aside from a postal box. It must be a huge postal box that accommodates an “institute”.

Alison, TBruce, W. Kevin Vicklund, and lilady– You’re all deluded. The fibers are real, and the “cycling, tax relief, alien photos & area 51” goodies aren’t. The nano-thingies have messed with your minds too much for you to see the truth, and your efforts to deter people from checking it out will ultimately be foiled.

It’s all clear to me now, because a new weather system brought very dry air to my area today. The dry air and my new orgone generator stymied Boeing’s efforts to make chemtrails here. No chemtrails means no mind control, and now their nefarious plots are laid bare to me and my powerful aluminum-laminate helmet.

Those last several comments are valuable evidence that no matter how bad a case of Morgellon’s is, it can become far worse if untreated.

I assure you there is nothing on the .org site about area 51, aliens, etc.

I think the HAARP angle is more than enough, thanks.

This is pure establishment BULLSHIT, fostered by moronic self imposed Gods who hate to admit they have no clue on how to deal with it. How could any thinking person truly believe that millions of people would experience identical symptoms by delusion.

How could any thinking person truly believe that millions of people would experience identical symptoms by delusion.

There are buildings all over the world that hold millions of people experiencing identical delusions. They are called “churches”.

For that matter, let’s observe that the symptoms lumped under “Morgellon’s” are not uniform. Some characteristics are similar, but there’s a lot of variability. And even the most pessimistic estimates I’ve heard for prevalence fall well short of “millions.”

This is pure establishment BULLSHIT, fostered by moronic self imposed Gods who hate to admit they have no clue on how to deal with it.

Whereas I’d put it that it is the delusion of “morgellons” (seriously ’50s B-movie vibe, no?) that is the product of those who have no clue how to deal with the problem. The studies I’ve read are saying, “damfweknow what’s causing this, but it’s not parasites.”

How could any thinking person truly believe that millions of people would experience identical symptoms by delusion.

Addicts in the throes of the DTs have been having the same delusion (“Bugs! Bugs all over me!”) for centuries. Now I’m not saying that “Morgellons” is the DTs, because that’s not supported by the evidence… but because other people in the past have demonstrably had their nervous systems misfire and come to similar conclusions should point out that it’s at least possible to be an internal condition having nothing to do with parasites.

— Steve

These patients are seeing licensed medical doctors, so-called LLMDs that are examining their fibers and diagnosing them as Morgellons. These doctors are feeding the delusions and fears of the patients. In fact, it seems these doctors are creating the delusions.

See the following PubMed article. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3047951/

The concentration of Morgellons was in Texas and California. This is coincidentally where these two LLMDs practice. The one has since relocated from Texas to the more ‘endemic’ California area, and more recently relocated again to Washington, DC.

How can these two medical professionals examine their patients, inspect their black, red, blue and “twisted” fibers, along with the ulcers and other skin lacerations on these patients and diagnose them as having mysterious creatures living and crawling around inside their body, eventually gnawing their way out? Yet, the $600,000 CDC study which analyzed patient fibers basically came up with carpet lint, not alien organisms.

Aside from whatever ails these patients, it is inherently wrong, seemingly criminal, that the doctor seems to be intentionally diagnosing these carpet fibers as foreign creatures. It is creates fear and hysteria in an already vulnerable patient population.

Despite this study and after personally examining the red and black twisted fibers for himself, this doctor is still asserting that “The people who say it’s delusional are going to look very, very stupid when the evidence comes out,” he said.”

http://sfappeal.com/news/2012/01/sf-doctor-cries-foul-on-cdc-report-suggesting-skin-disease-is-imaginary.php

I’ve had almost all the Morgellon’s symptoms from delayed food allergies.
Itching- yes, sometimes intensely, although the really intense itching was from 3 strawberries, and strawberries have a lot of histamine, which I think might have been part of the cause in that case.
Skin lesions – yes, I’ve had hives from food.
No feelings of crawling, or fibers or granules on my skin. But celiac disease is associated with skin problems of various kinds, and crawling feelings might be a variation on itching.
Fatigue – very much so
Short-term memory loss – very much so
Obsessive-Compulsive – yes, I used to feel compulsive about paying attention to some things
Impaired thought processing (brain fog) – main symptom of delayed food allergies
Depression and feelings of isolation – I stopped going through some intense depressive states after quitting foods I had these delayed allergies to. I also felt depressed after food challenges from some foods I had allergies to, but mostly in a general way I noticed after several months or a year that I wasn’t having those spells of despair any more.
I also got a lot more engaged in casual conversations.
It makes me wonder if these Morgellon’s people might be gluten sensitive or food sensitive, because it can have a lot of psychological and neurological effects, as well as the symptoms of inflammation.

I also have many of the same Morgellons symptoms, but they are caused by delayed food ‘allergies’. Certain foods that I eat cause my eczema to flare within hours after ingesting them, all dairy and fruit products are the worst, even plain sparkling water. Other foods like citrus, vinegar, tomatoes, and wine cause me to be excessively thirsty and make my skin feel uncomfortably dry within 20 minutes after eating. An ‘apple a day’ would sent me to an ER within a week or two.

I do not test as extremely allergic to these foods on any allergy test, and skin testing reveals welts at their worst 2-3 days after the test, long after I’ve left the doctors office. When I was a child, before anyone learned that the eczema was flared by delayed food ‘allergies’, I was eating fruits daily which caused intensive unbearable itching, skin eruptions, and open sores all over my hands and forearms.

The itching was unbearable, the steroid ointments barely took the edge off. As a child, I did not understand much about what was happening and as I recall I would regularly have lint, hair or ‘fibers’ seemingly glued to my hands and arms due to the sticky nature of the eczema.

My point is that if a medical doctor would have taught me that this eczema and those ‘fibers’ were caused by some foreign parasites, having no formal medical training and given the mostly negative allergy test results, I would likely have believed him. They did teach me that the eczema was definitely not caused by fruit or milk. Had someone suggested to me or my parents to consider the food ‘allergy’ possibility, it would likely have saved me years of grief and unnecessary medical costs.

If the above were to have happened in the age of the Internet and I was older at the time, I would have researched it online. I would have found the Morgellons support group sites, and their claims, delusions, would have reinforced the misinformation taught to me by certain doctors – doctors such as the ones that are teaching these Morgellons patients that their fibers are indeed mysterious creatures, undetectable by anyone at the CDC or elsewhere.

The physicians that are feeding the fears of these patients, taking advantage of their ignorance and naivete and exploiting them for much profit should not be allowed to practice medicine.

Fred says

Had someone suggested to me or my parents to consider the food ‘allergy’ possibility, it would likely have saved me years of grief and unnecessary medical costs.

I think that delayed food allergies might be responsible for a great many of these strange syndromes. Because the symptoms aren’t obviously connected to food. The body does its best to cope with the symptoms and builds up a tolerance, so one may have to do an elimination diet and food challenges to make them obvious.
Researchers have a lot of evidence that allergies can happen locally within specific organs, without systemic allergy. When I found that out, I started thinking that delayed food allergies might be local allergies somewhere in the GI tract – in the gut or maybe in the mouth.
Sensitive, irritable skin is definitely an allergy symptom.
My life would have been VERY different if I had been gluten-free from an early age. I found out about my intolerance to gluten and other foods when I came down sick at 43. As an unexpected benefit of doing elimination diets and food challenges – which took care of the physical sickness – I also found that my mind and personality changed intensely.
I wrote about my food reactions (after doing elimination diets) at http://camoo.freeshell.org/reaction.html and about the psychological changes at http://camoo.freeshell.org/psych.html
I don’t know exactly what is going on with the Morgellon’s people. Perhaps it’s no one single thing. Maybe they could collect the fibers for themselves and send them to a lab to be analyzed. I thinks facts are very important to resolve confusion. Are the fibers made of some body material – like hair? are they from clothing?

@113
To say that fibromyalgia does not exist as a discrete illness is not the same as saying that the problems we commonly associate with what we call fibromyalgia don’t exist, or that it is a psychiatric problem. Discrete meaning here that it is part of a continuum rather than a definite (discrete) category as defined by the number of tender points.

“Even though fibromyalgia is a diagnostic entity recognized by the American College of Rheumatology classification criteria and may have value in clinical medicine, there are sufficient clinical and epidemiological data to show that fibromyalgia does not exist as a separate entity, but rather represents the end of a pain-distress spectrum”

“Our data
would suggest that fibromyalgia is not a
discrete disease, and that it is just as rationale
to associate or not associate trauma with five
tender points or 10 tender points or the requisite
11 or more tender points. Similarly, for
basic research, there seems to be no rationale
for treating fibromyalgia as a discrete disorder,
and it would seem more appropriate in such
studies to examine the entire range of
tenderness and distress”

I prefer to take my information from the studies themselves rather than the often misreported articles in the mainstream press# Maybe that’s just because I’m ‘crazy’#

http://www#ncbi#nlm#nih#gov/pmc/articles/PMC1752352/pdf/v056p00268#pdf

http://www#ncbi#nlm#nih#gov/pmc/articles/PMC2944223/?tool=pmcentrez

@Laura. I film the fibers to get people thinking, to raise awareness, to show the public that what Morgellon’s sufferer’s see is not all in our heads. As my personal research into Morgellon’s has lead me to the conclusion that everyone, not just those presenting syptoms, has the nano particles responsible for Morgellon’s in their bloodstream, and that it is altering the structure and composition of ALL of our blood, I believe everyone deserves this information, whatever they choose to make of it.

These are not clothing fibers. Dr. Randy Wymore, a Morgellon’s researcher, sent samples to the Tulsa Police Department Forensics laboratory. Fiber experts Mark Boese and Ron Pogue ran a series of tests on two red and two blue Morgellons fibers. Both men decided the fibers were like nothing they had seen before. They compared the fibers to a database of more than 900 known compounds used in textiles, but found no match.

If you read the wording of the CDC study, it is very deceptive. They say the biopsies contained cellulose fibers (this confirms prior private and independant Morgellon’s research) that resemble cotton, or have IR spectral characteristics consistent with cotton, but the study doesn’t actually find what it can conclusively call cotton.

Of course most of the media outlets have chosen to ignore this fact, and report that the CDC found cotton fibers, therefore they must be from clothes and sufferer’s must be crazy, end of story.

“If you did that, would the skin lesions go away?” Apparently you have fallen for propaganda that is part of the cover up. Lesions are a rare symptom of Morgellon’s sufferer’s (ie, those of us whose bodies, for whatever reasons, are rejecting the material). They only want people to “think” it is a rare “skin condition”. In reality, these fibers are found throughout the entire body.

Morgellon’s fibers emerge from intact skin all over my body by the hundreds+ and I haven’t got a single lesion. The closest thing I get to “inflamed skin” is occasional mild hives between my breasts while bathing when the fibers are purging heavily, and these hives generally go away an hour or so after they appear. As I have stated before, I air dry to avoid confusing towel fibers with the Morgellon’s fibers.

Not relying on doctors is sound advice, Laura. After 15+ years of being symptomatic (common Morgellon’s symptoms I personally deal with include severe fatigue, insomnia, frequent headaches, muscle and joint pain, ADHD-like symptoms, memory loss, bipolar-type episodes, difficulty in regulating body temperature, respiratory and digestive issues), I have found western medicine typically approaches illness with a focus on symptom management, tending to offer drugs or surgery, rather than using a preventative or complementary approach.

I am unable to afford to see an ND or other holistic health practitioner, so, for the most part, I am my own doctor. I educate myself and take steps based on what I know, rather than just doing what a doctor tells me I should. Since I stopped listening to doctors, whose advice was only making me sicker, and took responsibility for my own health, I have improved substantially.

I’m not all better yet, but I am gradually healing. 6 years ago I was 60 pounds heavier, was a junk food addict, was so agoraphobic it was difficult for me to walk 20 steps from my front door without having a panic attack, my skin was extremely itchy, my scalp was always raw and sore and often bled, I sweat so much I had to change 2-3 times a day and the bottoms of my feet were pitted from constant exposure to moisture. At one point I suffered severe gastric distress and diarrhea every day for about 7 months and despite numerous tests (ultrasound, bloodwork, stool & urine tests, etc.), no cause could be identified. I experienced physical memories/flashbacks of the sexual abuse that took place in my teens 100 or more times/day, I was unable to sleep without taking medication that turned me into a complete zombie.

I still have a ways to go in terms of social anxiety, but I now am able to go out and do errands several times/week and even the occasional visit to family or friend’s homes. I no longer feel the compulsion to overeat, my skin only itches when the Morgellon’s is overly active, or if I consume excessive dairy or processed foods or certain additives, my scalp and feet are 100% healed, I perspire and over-heat substantially less and 1 outfit usually lasts me through the day. Digestive issues have improved 99%, I still get the physical memories, but their frequency has dropped substantially and generally only occur when I’m exposed to certain triggers. My sleep isn’t perfect, and although I use marijuana to get me to sleep, it does not make me drowsy or incapacitated all day like the prescription drugs did.

I do deal with frequent headaches, soreness in my muscles and joints that typically ranges from mild-moderate and chronic fatigue, but my consumption of pain meds is down 2 thirds from 6 years ago and since discovering oregano oil a few months ago, which I believe helps address the lyme aspect of Morgellon’s, my energy levels are gradually yet steadily improving.

I am, for the first time since I was a young teenager, excited about my future, rather than ranging from emotional numb, to outright suicidal at times like I used to be.

Anyways Laura, you are preaching to the choir with your advice to take an analytical approach to this problem, but I appreciate your concern. There is an article entitled “CDC calls Morgellons’ nanoworms a delusion, protects DARPA”, by Rady Ananda of Activist Post that might help you to understand what Morgellon’s really is and why they don’t want the public finding out the truth. I would post a link but the moderators on this site appear to have a problem with me doing that.

@Tanya. You were diagnosed with generalized anxiety? Do you know about Generalized Anxiety Disorder? It requires certain physical symptoms to diagnose. Some of the more common physical symptoms include:
*Fatigue
*Difficulty sleeping
*Muscle tension and aches
*Difficulty concentrating

There are plenty of other symptoms (including… skin issues!), but the above should look familiar to you (in fact, the are four of the six diagnostic symptoms along with restlessness and irritability). GAD is a real disorder, believed to have a physical cause in atypical functioning in amgydala.

As for your “dancing” fiber, I plucked a bit of feather fuzz of my pants (from my feather pillow) and it behaved much the same. If you’re letting your hands air dry, they’re probably picking up bits of airborne fuzz like that feather bit.

@Tanya, If you have visible fibers emerging from your skin, especially when you bathe, then this can surely be ‘proven’ to someone. Has anyone diagnosed you with Morgellons other than yourself, if so, who? What does your physician say about these fibers?

If nothing else, your physician could arrange for a sleep study, an overnight visit to a hospital-based sleep center. They film you while you are sleeping and meet with you in person before and after the overnight study. Most sleep centers even have a private bathroom for their clients. You could take a bath or shower to help the fibers emerge, as you claim they do while bathing.

Surely under such highly monitored conditions the staff there would see your fibers. You could let them take a sample of the fibers and they could send them to their lab for analysis. There is other useful information that you and your physician may learn from a sleep study, as well.

Tanya, you said that you want to raise awareness of this syndrome. You owe it to the patients that you want to educate to provide them with irrefutable evidence that you do indeed have such fibers. Otherwise, you are misleading patients with unproven allegations and possibly detracting and diverting them from finding appropriate medical care.

Regardless of your good intentions, detracting patients from receiving appropriate care could result in significant harm to them. Tanya, you owe it to the people that you want to help to provide the evidence that you have such fibrous creatures.

@Tanya, I have watched some of those You Tube videos. How do you really know that she was evaluated by two psychiatrists or that they found her not delusional and not having other mental problems?

How do you know that the two psychiatrists did not suffer from mental illness themselves? How do you know that she disclosed to the two psychiatrists her beliefs about having creatures or fibers exuding from her body, maybe she did not tell them everything?

http://www.youtube.com/watch?v=g-mlKgs2U78&feature=related

This is indeed a real tragedy. If this young woman is being taught by licensed medical professionals that she has creatures or other fibers exuding from her body as she describes in her videos, then this is just another example of patient exploitation. She may very well have a medical condition that causes extreme itching or other symptoms, but the actual cause of the condition is likely being misrepresented to her by these seemingly unethical providers.

Antaeus @ 150: Yeah, I would treat with extreme skepticism anything from the Forger’s Gazette.

elburto @ 113 said: “Phoenix Woman – have you noticed that mentioning his name [Dr. Frederick Wolfe’s] has one of two effects? Either the person claiming ‘disease X must be real, because it used to be said that fibromyalgia wasn’t real!’ will disappear, OR it causes a sort of word blindness, whereby posters pretend the bad words were never said, that there’s no way they are ‘crazy’.”

Heh! Indeed, Tony Mach seems to have run away, hasn’t he? Don’t worry, he’ll be back, making the same bogus argument. Feel free to keep handy the link to my comment, to slam him with whenever he pops up again.

@Tanya – since you seem to be living in a sci-fi graphic novel as your reality, it is also pointless to attempt to debate with you aslwe..

You guys are dangerously sure of yourselves and far too trusting. Ignorance must be bliss. You’re right, there is no link between fluoride and bone cancer or reduced IQ. Nazi’s only added it to the water supply in concentration camps because they wanted to make sure everyone had healthy teeth. Those jet contrails that now fill up the sky, linger for hours and block out the sun? You’re right. It’s always been that way and it’s perfectly normal (http://www.youtube.com/watch?v=jf0khstYDLA). Former FBI chief Ted Gunderson, a whistleblower who worked tirelessly to expose corruption, including the “chemtrails” (covert geoengineering) conspiracy, and spoke recently about attempts on his life, was not poisoned with arsenic(http://aircrap.org/ted-gunderson-fbi-whistleblower-poisoned/333385/). That’s just a hoax. Mmmm-mmm diet Coke! Shoot my kids up with more eugenics-funded vaccines, please, ’cause I want them to be REAL HEALTHY!

@Tanya
When I advised you not to rely on a doctor, I did NOT mean abandoning mainstream medicine!
Refusing to see doctors and going to see a naturopath is completely like jumping from the frying pan to the fire, in terms of reliability! At least you can’t afford naturopaths, that means you’re not exposed to some misleading advice.
All I meant to say is that doctors can’t do it FOR you a lot of the time.
Part of being analytical is seeing doctors! They have a lot of analytical tests they can do, to figure out what is going on with you. Like allergy testing! Have you ever gotten allergy testing???
It’s a partnership, and you can be analytical with your own health as part of the partnership, and you can get analytical information from your doctor as well.
By being analytical with your health, I do NOT mean just experimenting! Lots of people experiment.
Hardly anybody is analytical about their own health.
By being analytical, I mean doing the kinds of experiments I’ve been describing to you. Elimination diets/food challenges. Clothing without fibers.
I described earlier, very abbreviated, the way I analyzed my own sickness, which I had to do pretty much on my own, because my allergies have stopped showing up in standard tests. You could read that to get an idea of what I mean by being analytical about the problem. I did LOTS of fruitless experiments before I really got analytical and figured out the cause.
I’ve had the impression myself that doctors were just managing symptoms/throwing a drug at the problem. I’ve been displeased by that myself. Early on in my sickness, an allergist presented me with a steroid nasal spray. And I thought, isn’t that kind of silly? Isn’t the point to find out what’s making me so sick, rather than having to use a spray all the time???
But, the nasal spray DID give me useful info. Because it did make me well, temporarily. That gave me reason to believe that the problem WAS inflammation in my nose.
Also, that impression I had isn’t necessarily a fair one. Doctors DO also sometimes look for the underlying cause. Sometimes I’ve been sent to a specialist for that. Good doctors will look for the underlying cause. YOU also can be the one who looks for the underlying cause.
With the immune system – you say many things that sound like you have an immune problem – rather little is known, and often all they can do is symptom management.
Symptom management also is not something to be thrown away. It can be very useful.
Abandoning the medical profession and all their knowledge and skill seems like a large part of your problem, actually.
No, I have tried to use ALL the resources at my disposal. That means my own analysis AND doctors.

You’re right, there is no link between fluoride and bone cancer or reduced IQ. Nazi’s only added it to the water supply in concentration camps because they wanted to make sure everyone had healthy teeth.

Oh, boy. OK, Tanya, list your sources. It doesn’t actually occur in Perkins’s The Truth about Water Fluoridation, it doesn’t occur in Borkin’s The Crime and Punishment of I.G. Farben, and the “Perkins letter” contains zero documentation. So let’s have some actual evidence lest you be revealed as a Disinformation Operative.

I’ve got a comment stuck in moderation. Just look up Tanya’s reference on the internet:

http://aircrap.org/

“…I have to come to one of two conclusions. Troll or mental illness?”

Troll AND mental illness. They are not mutually exclusive.

Former FBI chief Ted Gunderson

When was Gunderson chief of the FBI?

You’re right, there is no link between fluoride and bone cancer or reduced IQ.

Damn straight I’m right. And there is no link, ya daft Bircher.

Nazi’s only added it to the water supply in concentration camps because they wanted to make sure everyone had healthy teeth.

Myth. A repeatedly busted myth, at that.

Those jet contrails that now fill up the sky, linger for hours and block out the sun? You’re right. It’s always been that way and it’s perfectly normal

If you know anything about condensation, yes they are.

Former FBI chief Ted Gunderson, a whistleblower who worked tirelessly to expose corruption,

As others point out, he wasn’t a chief… he was a Chief of Station at one point, but calling him “FBI chief” imputes that he was J. Edgar’s right hand or something.

Shoot my kids up with more eugenics-funded vaccines, please, ’cause I want them to be REAL HEALTHY

Damn straight; don’t want ’em to catch whatever you got.

— Steve

Personal experience is a horribly unreliable guide to “what works.” This is why we do science.

Tanya has proven to be very inconsistent in her claims, beyond the constant thread of conspiracy. She pointed to the “consistent” claims of symptoms of “Morgellon’s” patients (fatigue, muscle pain, etc), but when I pointed out these are classic anxiety/stress symptoms, admitted that, yeah, they are that… but there’s still a conspiracy causing them.

There’s no point arguing with someone with a conspiracy delusion, because then you’re either a victim or a member of the conspiracy.

When did the Illuminati start poisoning people with arsenic? It’s a bit old-fashioned isn’t it? Surely they would use ricin or one of those new poisons they have that induce death from natural causes.

The frustrating part of the story is that there are medical doctors that are feeding the fears and delusions of the patients. These doctors are likely making significant profits by perpetuating an apparently false epidemic.

These doctors claim that they have examined the patients’ black, red and blue twisted fibers as emerging from their bodies.

See the following PubMed article. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3047951/

Yet, despite the CDC study and after personally examining the red and black twisted fibers for himself, Dr. Stricker is still asserting that “The people who say it’s delusional are going to look very, very stupid when the evidence comes out,”

http://sfappeal.com/news/2012/01/sf-doctor-cries-foul-on-cdc-report-suggesting-skin-disease-is-imaginary.php

It occurs to me that some folks won’t get my reference to “Bircher”, as I’m doddering into geezerdom whether I acknowledge it or not.

http://en.wikipedia.org/wiki/John_Birch_Society

I’ll just leave it to the (hopefully) impartial Wiki folks, because if I started describing what I thought of the group I’d sound like one of the conspiracy types… but look where it’s headquartered, who’s daddy was a founding member, and how many JBS talking points show up in American political media.

I will say that’s why I don’t take fluoride and chemtrails seriously, and why Tanya’s repetition of so many JBS talking points disinclines me from granting her opinions on Morgellons Disease much credence.

— Steve

@ Steve: Welcome to the club…I knew immediately what your “Bircher” reference meant.

Here are the lyrics “Talkin’ John Birch Paranoid Blues”, performed by Bob Dylan at Town Hall, New York City. (note the cost of the tickets for his performance, circa 1963):

herr doktor bimler,
I always assumed that the bizarre idea that fluoride was used as a mind control drug by the Nazis is related to the sedating effects of bromide. They are both halogen salts after all.

Anton P. Nym,
I always remember Flight KAL 007 that was shot down by the Soviets for straying into their airspace in 1983. The President of the John Birch Society, Larry McDonald, was on that flight, which is more than a bit ironic.

“Tanya, are you aware of what resources and organization it would require for that conspiracy you describe to work? If they did have access to the kind of resources you describe, they wouldn’t need to act in secret.”

Very much aware. If the conspiracies I speak of seem impossible, I invite you to check out the documentary “Endgame: Blueprint for Global Enslavement” on YouTube.

It would seem that I’m not the only person who believes in the existence of such a vast conspiracy. Ever heard of Dr. Ron Paul, the republican presidential candidate whose popularity is growing steadily (latest poll shows Paul just 8 points behind Romney, whose popularity is dwindling)? He has spoken openly about the New World Order and opposes it. That is WHY he is so popular! Wonder why the media tries so hard to mariginalize and ignore him?

Many of you act as though the concepts I’m speaking of are on the fringe, but the truth is, the world is waking up. We are on to the globalist agenda to use eugenics through the food, water, air and pharmaceuticals to drastically lower the world’s population and enslave the survivors. I am convinced Morgellon’s ties into this agenda.

While there is some controversy surrounding the origins of the claim that fluoride was used by the Nazi’s, it absolutely does cause bone cancer (just google “fluoride bone cancer”) and reduce IQ (“fluoride iq”) and can cause reproductive problems (“fluoride infertility”). When dentists use fluoride, it is applied topically. Fluoride is of no benefit to teeth (or anything else) when ingested orally. Many dentists oppose the addition of fluoride to drinking water.

“It is concerning that you have so little insight into the likely outcome of inviting people to laugh at you.”

What people (at least the type who would laugh at me) think about me is of no concern to me. I am here to raise awareness and encourage people to think for themselves, not win a popularity contest. Seriously, get over yourself, your opinion of me is nothing.

“The people who say it’s delusional are going to look very, very stupid when the evidence comes out,”

Truer words were never spoken. The problem is that it will be a cold day in hell when the current establishment lets the truth see the light of day, and even if it did, the pathetic followers who would gang up and pick on someone going through a health crisis won’t feel an ounce of remorse for how they treated us.

While there is some controversy surrounding the origins of the claim that fluoride was used by the Nazi’s
I think we can all agree, however, that the claim did not originate from reality.

We have woken up, Tanya. Are you so naive as to not realize that everyone else is way ahead of you?

What people (at least the type who would laugh at me) think about me is of no concern to me.

Everyone’s happy, then. A win-win situation!

Care to elaborate, oh enlightened one?

That would be telling, Tanya.

I wonder how your colleagues would feel about your repugnant behaviour toward a disabled repeat trauma survivor. You should be ashamed!

Tanya, whatever you are suffering or have suffered, it’s not a Get Out of Being an Asshole Free card.

Is Tanya now claiming to be a “disabled repeat trauma survivor”? Is she accusing Narad of “repugnant behavior”?

Well Tanya, I am one of Narad’s Respectful Insolence colleagues…and I don’t find his behavior to be in any way repugnant. Your behavior however, shows a particular nastiness directed to anyone who does not share your political and your social views, including all your conspiracies, your ignorance about history and your Nazi revisionism

“Ever heard of Dr. Ron Paul, the republican presidential candidate whose popularity is growing steadily (latest poll shows Paul just 8 points behind Romney, whose popularity is dwindling)? He has spoken openly about the New World Order and opposes it. That is WHY he is so popular! Wonder why the media tries so hard to mariginalize and ignore him?”

We, of course have heard of Dr. Ron Paul and you’re a wee bit off on his popularity among registered Republican voter:

According to the Rasmussen telephone poll of like Republican Primary voters (Press Release 9 hours ago), 34% are for Romney, 27% for Gingrich, 18% for Santorum and 11% for Paul.

I guess your hopes for a libertarian, “health freedom” and anti-Big Government Interference Presidency are not happening, Tanya. Too bad.

lilady – apparently it was me. Tanya, I’m sorry that you took my comments that way. The thing is, if you are going to actively promote the idea of a worldwide conspiracy to commit enslavement, genocide, & all the rest of it, if you are unable to provide any evidence of that then you are not going to be taken seriously. As Narad’s has pointed out, for what you’re proposing to be true, then practically every doctor, scientist, military personnel & so on in the world would have to be in on it. At which point the whole thing would unravel – there is no way that this ” conspiracy” could be kept a secret. In fact, if it did exist, then comments like yours would be picked up by the conspirators & then… Hence what was intended as satire…

“Hence what was intended as satire…” Oh get real Alison! You were making fun of me.

” for what you’re proposing to be true, then practically every doctor, scientist, military personnel & so on in the world would have to be in on it. At which point the whole thing would unravel – there is no way that this conspiracy could be kept a secret. ”

Wow, ummm, ever heard of compartmentalization? The vast majority of those doing the dirty work for the conspirators have no idea what they are involved in. Their only crime is complacency. There ARE people speaking out, Ted Gunderson being just one example, and the whole thing IS unravelling.

Alison, You are living proof that educated does not necessarily equal intelligent. Again, if you don’t understand how it works, start by watching “Endgame: Blueprint for Global Enslavement”.

The vast majority of those doing the dirty work for the conspirators have no idea what they are involved in.

Precisely, Tanya. Nobody said you were a witting Disinformation Operative.

In the interests of full disclosure, I should point out that Alison is a PhD, but she does not call herself that on her webpage.
I probably over-reacted to Tanya because I lose sympathy for anyone who tries to co-opt the reality of Nazi atrocities to dramatise her own self-centred delusions, and diminish their enormity in the process. It’s a form of holocaust denial.

I should also point out that Alison has a close family member who used to be a member of a secretive “Government Communications Security Bureau”, so she is probably part of the conspiracy.

Aww, did I hit a nerve lilady? So touchy! I am not here to debate Ron Paul, nor defend my views on water fluoridation, chemtrails, etc. I commented because I want people to consider the possibility that the promotion of Morgellon’s as a delusion (or a skin disease, or parasites, or uncommon) is propaganda meant to distract the public while they make their best effort to cover up the truth, that it is manmade and widespread.

I have never asked anyone to believe me. I understand that what I’m saying is difficult to accept. I simply wish to encourage people to think critically and not jump to conclusions based on inconclusive research. I also want to speak out in defense of others suffering from this debiliatating condition, who are for the most part being treated extremely unfairly by medical “professionals”. Put yourself in our shoes and treat us how you would want others to treat you, or someone you care about.

“You do know, don’t you, that this site’s blogger and posters are people who actually know human physiology through their education in biology, chemistry and medicine? You aren’t doing your “cause” any good by arguing against science.”

Wow, really? Judging from the ignorance I’ve encountered here I thought you were a bunch of delinquent teenagers trolling the web from your mom’s basement. Do you seriously believe that just because someone studies science their opinions are the gospel truth? Scientists, even special ones like you guys seem to think you are, often have conflicting opinions. What is accepted as scientific fact today, can be disproven tomorrow.

Listen to yourself. You’re basically saying “We know everything because we’re scientists and you’re just a lowly, stupid, delusional Morgellon’s sufferer whose opinions have no validity, so shut up!”. You sound disgustingly arrogant.

You can memorize and regurgitate information and earn all the degrees in the world, but that won’t give you wisdom, or impart kindness (emotional wisdom), and you guys have done an impressive job proving it!

Btw, herr dorktor, click on Alison’s name. You’ll find yourself on her blog. On the left, under links, click “Alison Campbell”. What does it say there, right up at the top of that page? Hmmm? Hint: IT SAYS DR ALISON CAMPBELL.

Just for the record — just so we’re all clear — doktor bimler has shown himself to be a fool and a liar, hahaha! Couldn’t resist 😉

@Tanya
I’m glad you do see doctors sometimes. I’ve met people who have become set against mainstream medicine, and it’s a dangerous attitude to have.
However, you have avoided answering me, on whether you have done specific analytical things to diagnose yourself.
You’re avoiding challenging your self-diagnosis of Morgellon’s with analytical methods.
Not seeing a doctor for your symptoms, avoids challenging your self-diagnosis. That is part of analytically challenging it.
THAT is probably why you aren’t seeing them for it – probably NOT some commonly held idea about doctors “just addressing symptoms”. If you are imagining things, you could check THAT by having some medical person – or even some non-Morgellon’s non-medical person – nearby right after you take a shower. Do THEY see fibers coming out of your skin?
And as I said there are self-help analytical methods, like getting fibers out of your life for awhile, that you don’t seem to have done. You did it in a small way, by avoiding towel-drying, but apparently not in a more disciplined complete way.
And, checking your self-diagnosis by doing an elimination diet/food challenges.
I did read that Daily Mail article you linked to, and it describes people doing similar things to what you have done – grabbing onto the online Morgellon’s stuff.
I think of it as “downloading a thought virus from the internet”.
At least you are going outside the Morgellon’s self-reinforcing groups, by reading what people here say. I and probably most other people here, find the study that Orac cited, that looked at the reality of 115 people self-diagnosed with Morgellon’s, FAR more convincingly factual than your arguments.
I do relate to having found mainstream medicine not all that useful for some things, since I have delayed food allergies and (apparently) local inhalant allergies, and “brain allergies” – allergies that affect the mind in ways that aren’t well documented in mainstream medicine.
But, what I said STILL applies. You’re STILL isolating yourself, from analytically checking out your ideas by yourself OR by seeing doctors.

At the risk of bringing some data into this:

I’ve seen the sky without contrails. So have many of us. September 2001, “total ground standdown,” a few days with no commercial and little military aviation over the United
States. There are published papers on this natural experiment (“natural” in the sense that it wasn’t intended to study contrails or climate, not in the sense that it wasn’t done by humans).

Also, I treat disabled trauma survivors the same way I treat other people, disabled or not, trauma survivors or not: I don’t accept their claims just because of their disability or trauma history, nor do I reject them on that basis. PTSD can have a number of effects; I’ve yet to see a claim that it makes a person a better judge of unconnected facts or claims than the rest of us.

@Gray Falcon, “…you realize that it only takes one member of a conspiracy to bring it down…”

I sure hope so.

@ Tanya: You didn’t hit a nerve…I’m not the one with delusional parasitosis…or the one who plugs into widespread multiple conspiracies.

I myself rarely see contrails which are condensations from the exhaust of jet planes…I live in an area near to 3 major airports, just beneath various airports takeoff/landing flight paths. http://contrailscience.com/

However, when I traveled into the desert Southwest United States and traveled to the end of the Gaspe Peninsula Quebec Province, contrails from planes flying at high altitudes are readily visible.

You desperately need help for your delusions. You would do well also to stay away from conspiracy websites and study some real history and get yourself educated in the process of government.

“The conspiracy Tanya describes requires utter infallibility on the part of thousands.”

Precisely, and that is why they’re going to FAIL! 🙂

Damn… now I find myself hoping that Tanya is a Poe, because this is going way over-the-top.

— Steve

People with these weird beliefs almost always avoid carefully checking them. When I’ve suggested ways of checking their beliefs to such people, they’ve always come back with a standard “rap”. That’s what Tanya is doing – she has standard “lines” to repeat and alt-med lingo. What she does NOT do is say, “Good idea, I’ll try THAT!”
I suggested to a homeopathy believer online that he could do a double-blind experiment on himself to test homeopathy. Homeopathy should be very easy to test vs placebo, since the solutions are basically water – you just need a good way to randomize which is which and a good way to label which is which, that you check later.
But he barely addressed the question of checking his remedies vs placebo. He had a standardized rap that he did, and he just kept on coming back with variations on it. Tanya seems more intelligent than this person and her rap is more sophisticated, but it’s the same avoidance.

@ Tanya @ 206: Please stick around for my post stuck in moderation…I promise you that you won’t be disappointed.

It’s a shame Fred is not the Doctor. I want a ride in the TARDIS. (Oh, c’mon, I’m not the only one thinking that, right?)

Hey guys, really don’t feel like I’m being heard here. So much advice I’m getting on here is based on ignorance and assumption, so I thought I’d try a different approach. I have posted a video response on YouTube “re: Still More Evidence That Morgellon’s Disease is Delusional Parasitosis” on my channel, screwedworldorder. It’s kind of long, but I hope you’ll listen with an open mind.

@Thomas, there are millions of us now exposing some aspect of this conspiracy. The more of us who stand up, the safer it is for all of us. It doesn’t mean some of the bigger fish (ie, Ted Gunderson) don’t get fried, but we’re all going to die eventually anyways, and I’m a firm believer that you don’t go until you’re meant to. These monsters are already poisoning me and my family using soft-kill weapons through the food, water and air and I’m not going down without a fight!

@ Tanya:

I don’t know what is causing your problem but obviously you’re suffering- your skin is the source of troubling sensations *whatever* is causing it ( I will not put any labels on the condition or its causation)- the real issue is *suffering* and getting help for that. Peace of mind and comfort.
You sound as if you’re young- you don’t want this to go on long term- you want to have a decent life. You need to find a caring doctor who will find the appropriate medication that will _stop_ the terrible sensations that are harming you- forget what they call it!- if the meds work, who cares! You want the suffering to stop, don’t you?

Hey guys, really don’t feel like I’m being heard here. So much advice I’m getting on here is based on ignorance and assumption, so I thought I’d try a different approach.

Which is to say, a rambling 51-minute monologue in a venue in which you have control of the comments. (And, really, you’re the one linking to stopgeoengineering-dot-com, which links to Icke, so the “haha, aliens, what are they talking about” routine doesn’t play.)

It seems as though you’re looking for a supportive community. Perhaps everybody in the Morgellons circle has already heard everything from everybody else and it’s getting dull. You ought not to expect that the shared fantasy that causes that group to cohere can thus be packed up and taken elsewhere and immediately command not just respect but dutiful indulgence of anything that you want to assert.

You’re not looking for help, you’re demanding palliative confirmation of a belief system. I’m sorry to be harsh, but as long as you persist in this, you’re just reinforcing your plight. Psychiatry can be frustrating; I know from experience. But I would suggest that you take a step back and ask whether what you’re doing is actually helping. Perhaps it is, at least enough to get by. Perhaps you could find something more effective. But don’t expect the orchestra to spontaneously gather and the limelights to fire whenever you clamber onto an arbitrary stage.

I recorded a “Part 2”, tried to be a little more concise. A little difficult with my concentration, but I do the best I can. I will get that uploaded tomorrow. In the meantime, worth checking out on YouTube, a video called “Jeff And Jan Smith – Morgellons…See What The CDC Calls Hallucinations !” More of this non-existent fluff from our imaginations. In my video I’ll show you some of the material I’ve collected from my skin.

@Fred, can I ask what your profession is that you “have extensive knowledge and experience with Lyme disease.” and that you feel you have the authority to decide that I do or do not have Morgellon’s or Lyme? Google “lyme symptoms”, click on what should be the #1 result (canlyme) and you will see a list which mentions virtually every symptom I’ve described (headaches, joint/muscle pain, fatigue, digestive issues, reproductive issues, bipolar and depression, insomnia) and several other symptoms I experience, but forgot to mention.

@Tanya “Fred, can I ask what your profession is …”

All you need to know is that I am not a “medical doctor” and for purposes of this website you can call me “Fred”.

You should understand that not all doctors and not all patient support sites have your best interest in mind or offer accurate medical information. I suggest you question the accuracy of the information presented by your source, canlyme, really research it and go to the source. Where did they get the list of all those symptoms you describe, what was the original purpose of that list being written, was it to document the known symptoms of Lyme disease or to simply make a list of every possible symptom for a research project about Lyme?

You do not seem like you are ready to do the work to get better. When your suffering gets to be too much for you and you lose the little remaining audience you have, maybe you will change.

I have better things to do than to argue with you about chemtrails, conspiracies, Lyme or Morgellons. Those topics have been discussed and explained to you quite clearly by others much more qualified and skilled than myself.

You can believe what you will. My objection is that you are spreading bogus information into the patient population. The people on this blog can easily refute your paranoid allegations, but many patients can not. Do everyone a favor and keep your illness to yourself. The qualified, reputable doctors are busy enough trying to deal with patients who actually want to get better.

Terrie, As I see it, a large part of the confusion and misinformation about Lyme disease is that a lot of it is being spread by real doctors. Those symptom lists Tanya referred to are being distributed by many leading ILADS doctors and given to their patients with the explanation that Lyme can indeed cause all of those symptoms. It is hard for patients to distinguish what is true or false when licensed physicians are giving out the bogus information and diagnoses.

Google U aside, the so-called LLMDs have created quite their own share of the market from people like Tanya and others.

@Fred, it’s more that she had repeatedly referenced “Google this topic” as if that was proof. As a librarian, the googlification of information is somewhat depressing to me. I love Google, but it’s hardly the be all and end all of research.

So your awareness of “a web-page on the CDC website” does not extend as far as having seen it

Not that “it” is difficult to find, despite having been immediately purged from teh Intertubes by the Powers That Be. (Extra points for the Tom Bearden reference in the URL.) Interestingly, none of the versions floating around contain the URL of the purported original, and at least one has had the HTML modified to turn the background yellow on the “damning” text. Indeed, a search on “NOTE: To learn more or to report suspected cases” turns up only references to this very item.

@Fred I’m a little surprised you’re not a doctor, considering your total lack of ability to listen. You sound like quite the know-it-all and come across as very condescending.

“You do not seem like you are ready to do the work to get better. When your suffering gets to be too much for you and you lose the little remaining audience you have, maybe you will change.”

Have you not heard anything I’ve been saying Fred? I HAVE changed my entire lifestyle and approach to healing after following the advice of experts, for many years, got me nowhere. I have made many changes in my life, all with positive results.

I’ve relocated to a far less polluted environment, cleaned up my diet, taken up growing my own food, become much more physically active, I am constantly learning about various ways to make myself healthier and and applying that knowledge.

I’ve taken myself from being a nearly housebound agorophbic, experiencing 100+ “physical memories”/flashbacks of sexual abuse/day who sweat so much her feet were damaged from constant moisture, constantly craving sugar & carbs, very overweight, so unable to focus I required either complete silence or white noise and an uncluttered environment to complete simple tasks, difficulty falling asleep, multiple panic attacks/day, hair falling out, raw itchy scalp, adult acne, neck & shoulders always going out, recurring ear infections, recurring thoughts of suicide, frequent abdominal pain. This was the result of following the recommendations of doctors, psychiatrists and other medical experts for years.

Now all of the symptoms listed above have either been eliminated completely or have improved substantially as the result of major lifestyle CHANGES.

“I have better things to do than to argue with you about chemtrails, conspiracies, Lyme or Morgellons.”

Ditto. I’m here to raise awareness.

“Those topics have been discussed and explained to you quite clearly by others much more qualified and skilled than myself.”

Where? When did this happen?

“Do everyone a favor and keep your illness to yourself. The qualified, reputable doctors are busy enough trying to deal with patients who actually want to get better.”

WOW. Do you HEAR how you sound? You are essentially telling me, someone you claim to believe suffers from severe mental illness, to crawl in a hole and die?! Thank you again for illustrating for us all the shameful ignorance and callousness with which Morgellon’s sufferers are treated. BEYOND PATHETIC could be used to describe more than one commenter on this page. Astonishing levels of arrogance here, holy cow!

My connection is messed up today, so it may be a bit until my video response Part 2 is up, not that Fred has time to watch it 😉

@Tyranny News “What’s more interesting to me is the expanse of time between the commissioning of the study in Jan 2008 and the first research article to be produced in Jan 2012.”:

A quick Internet search seems to indicate that the CDC study may have been completed near the end of 2010. However, the study then had to go through peer review and then journal publication processes. This takes time, not a conspiracy.

@TyrannyNews Thanks for your encouraging words. I find it hilarious that it was suggested I was here looking for support, considering the kinds of topics discussed here. It is nice to know someone on here is capable of compassion.

Whether people believe what I’m dealing with is physiological or psychological shouldn’t make a difference in how they treat me. As I’ve said before, if these people really think I am in a vulnerable state, as they claim to, they would be even more caring and gentle in their approach.

That’s not a ploy for their sympathy, I’m trying to point out the fact that some of the posters on here make it clear that they think poking fun at and patronizing the mentally ill (or those they claim to believe to be mentally ill) is perfectly acceptable behaviour, when in fact it is deplorable.

It reveals a great deal about their character and prejudiced and disdainful attitudes toward those facing mental health challenges.

I suspect they feel justified in their treatment of me because at some level they know what I’m saying is true and it terrifies them, which manifests as hostility toward me.

“Doctor Fred”, especially, reveals his feelings about the general public’s ability to think for themselves (implying he feels our thinking should be done for us by a scientific elite?), in his anger at me for misinforming people, when I don’t offer any medical advice, nor try to tell anyone what to think. I simply speak from my own experiences and research, which I have every right to do, and when I share this type of information, I expect people to do their own research and not take action based solely on my opinion.

“From my research, when the conspiracy theory becomes a historical event or fact of science this new information doesn’t seem to reach those who might have once challenged it.”

Or they pretend it doesn’t reach them to save face and so they can continue to live as if nothing is wrong.

Yes, the pittance spent on this bogus study is nearly as insulting as the study’s “findings”, or lack thereof.

I appreciate your input and for sticking up for me. 🙂

Thanks for your encouraging words. I find it hilarious that it was suggested I was here looking for support, considering the kinds of topics discussed here. It is nice to know someone on here is capable of compassion.

So you were looking for compassion? “Hi, I’m here for some compassion, and by the way, that involves accepting that there is some sort of amorphous nanochembildermasonschild thing going on, and make it snappy”? That version of “compassion”?

@Tanya Doing your own research online will result in you getting incorrect, distorted information from dubious sources, such as you list from canlyme. Those long lists of nearly 100+ symptoms from Lyme disease are unfounded. The symptoms are being misinterpreted and that distorted data is being spread across the Internet. This results in patients like yourself being mislead about the real cause of their symptoms.

There are a lot of medical doctors out there that will in fact diagnose you as having any disease that you want. They profit from it. Exploiting you is good for their business. You are an easy target for them, especially given your history.

Delusional does not necessarily mean hallucinating. We all see those fibers in your films. However, there is no evidence that they are anything but carpet fibers and other environmental debris.

If you look for an LLMD to diagnose you with chronic Lyme disease, I assure you that you will find one. Some will even encourage you to sell your home, cash out your life savings, and relocate near their office so that they can gain total control over your life and more easily prey on your fears.

You post that you are a stay at home mom. This cycle of mental illness could likely continue onto your children. You need help -more help.

It is very sad to see that some doctors are manipulating seriously ill patients in this manner. If you are the Tanya commenting in the article you posted at #149, then there should be plenty of resources available for you to receive adequate assistance, assuming you can afford it and are open to receiving it.

Good Luck.

@Fred, Obviously when I’m researching something, I don’t expect everything I come across to be 100% accurate. I have noticed that my symptoms are similar to symptoms Lyme sufferer’s complain of. Just because a symptom is listed on CanLyme or anywhere else doesn’t mean it was “scientifically proven” to have resulted from Lyme. Those lists are for reference, not diagnosis. I think considering my symptoms and how long I have had them, Lyme is worth ruling out, and where I am living I will be fortunate to find an MD at all, nevermind an “LLMD”.

“There are a lot of medical doctors out there that will in fact diagnose you as having any disease that you want. They profit from it.”

No, really? That’s never crossed my mind before. So you’re saying, not all doctors are honest? I’m stunned. I thought all physicians were hand-picked by the angels for their honesty and integrity. Don’t worry, Fred. I own no home, savings or other assets to exploit. Being disabled your entire adult life does that.

EARTH TO FRED: I haven’t been “manipulated” by any doctor. I am currently under my own medical care and my health has improved substantially as a result of the steps I’ve taken based on my own research and intuition. Are you saying I should go back to doing the things that were only making me sick, depressed and at times even suicidal? Should I continue to hound doctors who have told me they don’t know what is wrong and don’t know what more they can do to help? Do you know what it’s like to be treated like a hypochondriac just because they don’t yet have the information necessary to figure out what’s wrong with you? Eventually you either let it kill you, or you take matters into your own hands, educate yourself and become your own healer.

“If you are the Tanya commenting in the article you posted at #149, then there should be plenty of resources available for you to receive adequate assistance”

Yes, I am that Tanya, but I don’t see what the following comment says about the resources available to me.:

“Some common myths about Morgellon’s; 1) Morgellon’s is a skin condition. Truth is, many sufferer’s, myself included, have no lesions, and see fibers emerging from intact skin. 2) Morgellon’s is rare. There are several doctors and scientists who know Morgellon’s exists, and some of their findings suggest EVERYONE has this material in their bodies and that it is altering the structure and composition of our blood. I suspect that those showing symptoms are the ones whose systems are rejecting the material, for whatever reason. 3) Morgellon’s is a delusion. Isn’t a delusion something only you can percieve? Everyone I have shown these fibers to can see them. A growing number of doctors claim to be able to see them, too. Search “Are You Delusional? Find out now! FREE Instant Test!”. Maybe you are suffering from these delusions, too. FMI on the coverup, and what Morgellon’s really is, I recommend you search the article “CDC Calls Morgellons Nanoworms A Delusion, Protects DARPA”.”

If not thinking for yourself, or taking responsibility for your own health is working for you, then you keep doing that. I’ll do what works for me.

When I ask you to be nice to me, it’s not “for me”. I am asking you to be sensitive toward Morgellon’s sufferers and people dealing with mental illness in general, to think about how your words might affect someone who is facing a crisis.

Tanya, “nice” doesn’t mean anything in this context. I have taken you seriously enough to sit through the better part of 90 minutes of your Youtube monologues. If you think I am unfamiliar with mental illness and very real associated crises, you are mistaken. My experiences have not made me more inclined to indulge conspiratorial fantasies.

The mere fact that you would say somthing like this indicates that you have some insight into what you’re doing:

How would you feel if, like me, you believed that everyone’s bodies were infested with this manmade nano-crap, regardless of whether they are shedding fibers, and that the CDC was hiding what it knows?

It’s up to you to decide whether the relief provided by this pursuit is adequate. Obedience to demands that “you children” “WAKE UP!” and join you on the bad trip isn’t in the cards one way or the other.

Tanya @149 posted, “http://www.dailymail.co.uk/health/article-2096439/Morgellons-IS-real-Thousands-claim-suffer-agonising-skin-condition-doctors-claim-psychological.html”

Tanya, Let me be more clear. Your comment included your full name and location, Tanya MacDonald, BC Canada. There are some major cities in BC Canada, and judging from your videos, you also appear to be relatively close to a major air base, Comox.

According to Wikipedia, Comox Air Base is in Comox, BC, which is located on the eastern coast of Vancouver Island. (What I would do to see that beautiful part of the country!) Both of these would indicate to me that you can not be too far from full and competent medical services.

Therefore, your comment does indeed indirectly indicate to me that you have access to medical resources.

Fred, as I’ve explained, I’m looking for a regular family doctor, and yes, 2 costly ferry trips away there is a city with access to more than one physician. I do occasionally see doctors about other issues, though this is normally in a walk in clinic, where I don’t see the same doctor. I have relocated to different communities a couple of times in recent years and finding a regular physician has not been a top priority over the past few years, as my health has been steadily improving and I haven’t had any recent health emergencies.

As I explained before, I am a little wary of telling a Dr. I have Morgellon’s, although I have plans to do so once I find someone I can trust. I will not be taking anti-psychotic medications or seeing a specialist about delusions. Again, I have shown the fibers coming out of my skin to other people, and they see them, too.

Can you honestly tell me all those fibers shown in the video “Jeff And Jan Smith – Morgellons…See What The CDC Calls Hallucinations !” are just cotton, particularly the ones that move, or that they are not embedded into the skin in some of the photos? Fibers absolutely could get suck in scar tissue or broken skin, but this is coming out of intact skin all over my entire body.

In fact, I shed so much of it my entire house and all my electronics are infested with it. I spend an hour or more per day walking around removing this junk from surfaces in my home. A couple of times a month I spend the whole day giving my home a thorough de-fuzzing.

I have no carpets in the house, I like to see my surroundings so I have few curtains, the laundry room is always kept closed when I’m using the dryer, and only have one small short-haired black dog. When examined closely, the majority of the fiber is red, blue and white, consistent with the colours of the majority of the ones from my skin and NOT consistent with the majority of our clothing upholstery, etc.

I have moved a few times in recent years and within a couple of weeks, I thoroughly infested my new homes. FMI on Morgellon’s patients infesting their home environment, google the article “New, Serious
Morgellons Revelations”. I experience and I plan on making a a video on this very subject in the near future.

Anyways, Fred, A good doctor will examine samples and do a thorough examination, possibly even refer the patient to be examined by a dermatologist, before reaching the conclusion the patient is delusional. Anything less is malpractice and even excellent doctors can be wrong about some things. Just because I’m not popping pills from the first doctor I can find doesn’t mean I’m not taking major steps toward getting healthy. There are many paths to wellness.

In fact, I shed so much of it my entire house and all my electronics are infested with it. I spend an hour or more per day walking around removing this junk from surfaces in my home. A couple of times a month I spend the whole day giving my home a thorough de-fuzzing.

Tanya, this is likely a wasted effort but I’m going to try one more time to introduce a reality check into this discussion. That stuff on your electronics is common household DUST. The people who are encouraging you to believe otherwise do not have your best interests in mind. Once again, the fibers on your skin and in your house are DUST! They are not manmade nanotech fibers. There is no conspiracy to infect everybody. For your own sake, please let go of these fantasies before you get completely untethered from reality.

Vicki, you are talking about offering advice to a friend in a respectful manner. Advice you say was requested.

What many people here have done is make jokes at the expense of someone who did not come here seeking advice. I posted because I truly believe the human race is in danger and I feel it is my responsibility to warn people.

I am not insisting that anyone agree with or even like what I have to say. I just have trouble understanding some people’s need to be an a-hole just because they don’t agree with me. You seem to have the mistaken impression that my problem is the fact that not everyone agrees with me.

I wonder how these guys treat religious people. Some religious folks have some pretty wacky beliefs. Do they think it’s okay to make fun of them, too? I am pretty accepting of most everyone as long as they aren’t child molesters, axe murderers or Shirley Phelps-Roper. Some of the things people believe are pretty bizarre, but that doesn’t make them a bad person who deserves to be treated disrespectfully.

It *is* possible to vehemently disagree with someone while not being a complete prick.

Believe it or not, I’m doing this because I care about people, even the condescending know-it-alls, because I know the majority of them are only like that because they’ve been programmed and drugged from birth so they can’t think for themselves, and to ridicule anyone who still can. We are all under mind control to some degree, clearly some more than others.

**********************

“If there is a black van, but immediately upon seeing it, I jump to the belief that it was sent by a secret government conspiracy out to get me, that’s a delusion.”

Agreed 100%. However, if you have seen compelling evidence suggesting the government is planning to take you away in a black van, then that’s an informed opinion. I am not just parroting what someone else said. I have been researching the New World Order and global depopulation/eugenics “conspiracy theory” for years, and at first I was angry because I thought it couldn’t be true and that people were using false information to sell books, etc. I am a very skeptical person. I need to see or experience something for myself before I accept it as truth.

I should also point out that not all Morgellon’s sufferers think it’s part of a conspiracy. Most don’t know what the hell it is. Are they delusional, too?

*************************

“Tanya, this is likely a wasted effort but I’m going to try one more time to introduce a reality check into this discussion. That stuff on your electronics is common household DUST. The people who are encouraging you to believe otherwise do not have your best interests in mind. Once again, the fibers on your skin and in your house are DUST! They are not manmade nanotech fibers. There is no conspiracy to infect everybody.”

You seem so sure that you’re right. How do you know what you are saying is the truth? How deeply have you researched Morgellon’s? Have you ever spoken face-to-face with someone with Morgellon’s or are you just basing your conclusions on an inconclusive study and what you percieve to be popular opinion? What qualifications or experience do you have that gives you any authority to decide whether I’m delusional?

Those who accuse me of being naive, look in the mirror. Admit that YOU can’t *prove* Morgellon’s doesn’t exist, even the CDC couldn’t prove that, and you are basing all your *assumptions* about me on your *assumptions* about Morgellon’s and nothing more. Furthermore, you are using your unfounded assumptions as justification for your mean-spirited jokes and codescending “advice”. Pretty sad that none of you seem to be able to grasp any of this, despite how smart and educated some of you seem to think you are.

You seem so sure that you’re right. How do you know what you are saying is the truth? How deeply have you researched Morgellon’s? Have you ever spoken face-to-face with someone with Morgellon’s or are you just basing your conclusions on an inconclusive study and what you percieve to be popular opinion?

I’ve watched your video and plowed through your many posts here – does that count as research? Your arguments are not convincing because they’re based on highly implausible conspiracy theories — to wit:

Believe it or not, I’m doing this because I care about people, even the condescending know-it-alls, because I know the majority of them are only like that because they’ve been programmed and drugged from birth so they can’t think for themselves, and to ridicule anyone who still can. We are all under mind control to some degree, clearly some more than others.

Sigh. The Matrix was just a movie, you know.

What qualifications or experience do you have that gives you any authority to decide whether I’m delusional?

I have none, and I don’t believe I ever used the word delusional. I merely pointed out that there is a much simpler explanation for the fibers that keep “infesting” your living spaces. However, I am quite familiar with most of the conspiracy theories you keep citing in support of your arguments, and the very fact that I can easily read about them online means that the cover’s been blown for quite some time, doesn’t it? And yet we’re all still here.

Tanya:

One big problem with conspiracy theories is which ones do you believe? You claim that your research has convinced you of the “New World Order” etc. Are you also convinced that President Obama was not born in the USA, and faked his Hawaiian birth certificate? There’s lots of evidence proferred for this. Was 9/11 an inside job? There’s plenty of evidence offered for that. What about the Global Jewish Conspiracy and the protocols of the Elders of Zion? Lots of evidence there, too. Commies in the US Government plotting its overthrow in the 1950’s? Sen McCarthy had all kinds of proof. He was a Senator, after all.

So tell me, how do you choose?

Conspiracy theories serve woo-meisters in a few ways:

First, they *explain* why the brilliant theory( hypothesis) is not accepted by the mainstream and why the revolutionary of science is rejected instead of lauded. *Because* the powers-that-be are motivated by other interests than the truth!

Secondly, they are diversionary tactics: if you are made aware of how incredibly corrupt and dastardly the ( government, medical establishment, corporations, science, universities, media- choose one or more) is/are you might not look at your informant’s credentials or motives. If your faith in the authorities is undermined, you’ll not listen to experts.

They also promote an “us vs them” mentality that stokes emotional response rather than careful consideration: if you ramp up fear and get people to think of themselves as victims of powerful vested interests they may assist you in *your* fight against your enemies list( the establishment).

@ Edith- btw-some of us have been inside the Matrix so long we can do the algebra.

So sodium fluoride […] isn’t the main ingredient in mood-stabilisers such as prozac?

No, Tanya, it isn’t.
Some of the SSRI family of drugs contain fluorine atoms substituting for hydrogens (no sodium, though), but not all of them do.
But at least you’ve stopped trying to link fluorine to Nazi concentration camps, so there is some progress.

So sodium fluoride … isn’t the main ingredient in sarin nerve gas

That would be another no, Tanya.

Yeah, and most people are in a drug/tv-trance-induced stupor, think it’s a joke, and are too lazy and complacent to figure out that it’s not.

Yeah, you’re right. I’m far too lazy and complacent to make any more effort to persuade you that you’re wasting your time and energy believing mutated John Birch Society paranoid tropes. It’s your life. Keep on filming lint and telling people about the New World Order if it gives you such satisfaction. I’m unlikely to survive the great cull when the eee-veeel (like the fru-its of the dev-eeeel) depopulation program is finally launched, so you’ll get the last laugh anyway.

@Denice – kudos! I go into bullet-time trances when confronted with algebra. I also get easily distracted by cool leather costumes and butt-kicking antics.

Tanya,

A quiz:

When the government allows lengthy videos exposing their deepest secrets to appear on Youtube it means:

1) The government hasn’t figured out the Internet yet, and thus revolutionaries can still use it to expose them
2) The government is so confident of their victory that they don’t care whether their secrets are exposed, meaning that you’re wasting your time.
3) The government is just biding their time before capturing all the people foolishly exposing themselves as rebels
4) The government is paying off people to publicize millions of bogus conspiracy theories so the real conspiracies go unnoticed.
5) You’re deluded, and no one cares what you post to Youtube as long as you don’t pose a threat to your neighbors.
6) You’re having fun seeing how big a lie you can convince people that you believe

Or did I miss an option?

My stupor was induced by my cat to ensure that I do his bidding. Why do think they’ve developed such a soothing purr? It’s too keep us in perpetual slavery to our feline overlords.

Yeah, and most people are in a drug/tv-trance-induced stupor, think it’s a joke, and are too lazy and complacent to figure out that it’s not.

Tanya, is that or is it not a good-sized TV that serves as a backdrop to your ten-minute video meditation on a piece of environmental detritus stuck to the end of your finger?

Take a look at the pictures of my lesions etc. on my web site morgellonsthetruth. My sores, symptoms and problems with the medical professionals are identical to Morgellons.It has taken decades to find a doctor who instantly knew what was wrong with me and diagnosed Ehlers-Danlos a ‘rare’ genetic condition that causes a mutation of collagen. Elastosis was found in half of the biopsies undertaken by the CDC. Elastosis is connected to E.D. I have been in contact with a number of Morgellon sufferers who are also hypermobile. Doctors must look for underlying conditions that cause poor wound healing and pruritis. People are unnecessarily suffering with genuine physical illnesses for years on end. I wonder how many dermatologists have degrees in psychiatry to justify labelling patients with a psychiatric condition? The dermatologist flatly refused to do any tests on the sore on my nose a year ago and discharged me. Two hospital consultants have spotted this sore recently and urged my G.P. to refer me to a dermatologist as they are of the opinion that it is a Basal Cell Carcinoma. Show me a better person who could come through all this sane.

@ dedicated lurker:
Believe me, it doesn’t exist, I’ve been there: there’s nothing there.

“The logistics just don’t look plausible to me.”

Watch Endgame: Blueprint for Global Enslavement to get the basics of who is involved and how it works.

“A real disease can be discovered, studied, and potentially treated by independent scientists.”

Well again, Morgellon’s isn’t a disease, it’s a syndrome. It is how the body reacts to the presence of this material which we all have inside of us and the independant scientists who actually have the balls to research Morgellon’s already know a lot about Morgellon’s. They know what it’s made of, how it replicates in the human body and how to slow down that process, to some degree.

Of course these are not publicly funded studies, nor will the CDC, WHO etc. listen to the independant researchers, whose findings condradict with what these governing bodies want the public to believe about Morgellon’s. For further information on what is now known about Morgellon’s, watch, “Chemtrails and Morgellons – Dark Agenda of Synthetic Biology 2011” on YouTube, with an open mind and heart.

“the conspirators never actually achieve any of the big goals they’re supposedly after”

Oh, really? Again, see Endgame, research the New World Order because you’re living in it. Learn about eugenics and soft-kill weapons because you are their victim.

“there’s one problem I always have with the trope of “think for yourself”: Often, the people who make the demand can’t seem to understand that other people might come to a different conclusion as a result of thinking for themselves.”

I have that same problem.

“One big problem with conspiracy theories is which ones do you believe?…how do you choose?”

How do you choose what to believe and what not to? I look at both sides of the coin, gathering information from a variety of sources, and going with what I feel, on a gut level, to be correct. Not going to make a list of all the conspiracies I believe to be true, and which ones I don’t, or have insufficient information to form an opinion about.

“If your faith in the authorities is undermined, you’ll not listen to experts.”

Listening to experts doesn’t mean blindly following all of their advice. The opinions of so-called experts vary greatly and if you have seen countless examples of the corruption and negligence of “experts”, it’s only wise to be wary and think critically when seeking advice.

“You keep complaining that people are being disrespectful to you. I think tolerance can be pushed so far before people (doctors) start pushing back. It seems like you will only be satisfied if people agree with you. Is that really what you want your doctors to do, agree with whatever you say? Don’t you go to them for their professional, trained, experienced opinions? ”

I think I’ve made it pretty clear that I am not complaining about the way “doctors” are treating me and that I’m referring to some of the commenters, yourself among them. As stated several times, I have not told any doctors I have Morgellon’s yet. I am not looking for a doctor who will only tell me what they think I want to hear, and no, I would not discuss the New World Order or my belief that Morgellon’s is part of the eugenics agenda with physicians unless I knew they were “awake”, too.

A “professional, trained, experienced” doctor would never declare that a Morgellon’s sufferer was delusional based on an inconclusive study and without examining the fibers and the patient’s skin for themselves. Some doctors HAVE really looked into Morgellon’s and are convinced these fibers ARE coming from from patient’s skin and that they are NOT textile fibers.

“What are you teaching your children? So sad…they must live in fear of everything…”

Yes, how terribly sad. A mother who fights tooth and nail to save herself and her family and to help create a safer, more peaceful world for them. Alert the authorities, lol!

I teach them to think for themselves and to fear nothing. I often say “Don’t believe me just because I’m your mom, or because you think I’m a nice person.” I am a mother, not a programmer. My job is not to teach them what to think, but to encourage them to think critically while keeping an open mind.

If I think a piece of information is vital, and age-appropriate, I might share it, but generally I try to shelter my family from the more stressful aspects of life. The kinds of things we are discussing here can be very frightening for children and I am trying to provide as emotionally healthy and stable an environment as possible.

herr doktor bimler, if you think fluoride is good for you, drink up! Personally, the fluoride issue hasn’t been my top priority and I haven’t double-checked everything I’ve heard about it. Thanks for keeping me on my toes! You are correct that it is not SODIUM fluoride in Prozac or Sarin, although fluoride compounds are key ingredients in both.

Does it really matter? A drug that has been found to reduce IQ, increase the risk of developing certain cancers and adversely affect fertility in most animal species is being added to much of the world’s water supply, as well as the food supply via canned and prepared food made with fluoridated water. That alone should have people up in arms and the reason it doesn’t is because most people are on fluoride. Under most circumstances, people should be free to decide for themselves whether or not they want to be medicated. Surely you can agree with that.

Thomas, you missed one. 7) If they always censored certain types of information it would become obvious to slaves like you that they were hiding something. It is much easier to hypnotize you to laugh off such ideas using the media and mass medication than to silence every dissenting voice.

“Tanya, is that or is it not a good-sized TV that serves as a backdrop to your ten-minute video meditation on a piece of environmental detritus stuck to the end of your finger?”

I haven’t had cable for several years. I have a DVD player and the TV is used for videos. Really grasping at straws, aren’t we?

@Shirley “I wonder how many dermatologists have degrees in psychiatry to justify labelling patients with a psychiatric condition?”

Looking at some of the comments here, it would appear many don’t need to have any medical background whatsoever to make such a diagnosis. I have heard of your blog before, and will check it out.

Anyways, guys, it’s been fun but I think it’s time to move on. Keep checking my channel, screwedorldorder. The digital kids’ microscope I picked up at the thrift shop for 3 bucks actually works pretty good. Last night I found a particularly active fiber and shot some footage at 10x and 60x magnification. A lot of the movement can’t be explained by airflow or static. You’ll see. Now that that’s set up I hope to be putting up videos on a more regular basis.

I also am going to be posting an article on my blog very soon about ways to mitigate the symptoms of Morgellon’s, so look for that in the near future.

Cheers, Tanya 🙂

Well, if Tanya listens to her “gut” that explains a LOT. The gut is notoriously stupid. I’m willing to bet that she also doesn’t understand that magnification also increases the visibility of movement. Under enough magnification, you can actually see the hour hand on an analog watch move. Cool, but pointless.

Could Tanya be getting all her (mis)information from YouTube?:

Tanya is perfect example of the people that Matt Tabibi talks about in “The Great Derangement.”

“…the independant scientists who actually have the balls to research Morgellon’s already know a lot about Morgellon’s. They know what it’s made of, how it replicates in the human body and how to slow down that process, to some degree.

Of course these are not publicly funded studies, nor will the CDC, WHO etc. listen to the independant researchers, whose findings condradict with what these governing bodies want the public to believe about Morgellon’s. “

Tanya, the scientists that specialize in diagnosing Morgellons are some of the same scientists that have been found guilty of scientific fraud. How can you trust those type of scientists? See my previous comment at #98.

Morgellons expert Dr. Raphael Stricker’s studies are no longer funded by the NIH because he was found guilty of scientific misconduct. http://grants.nih.gov/grants/guide/notice-files/not93-177.html

The more *likely* scenario is that one of the Morgellons fibers that we all have within our bodies (according to Tanya), is an antenna. You just think you are safe from hypnotism…your computer is broadcasting those hypnotic messages to your antenna/Morgellons fiber.

According to some LLMDs, it’s not the Morgellons antennas that cause such ravaging syndromes, but rather the EMF’s surrounding all of us. They say the only way to combat the evil EMFs is to purchase their specialty products and cover your bodies with silver-coated clothing, use silver-coated cloth curtains and bed canopies and protect your home with special shielding graphite house paint. (That is if you can afford to own a home after purchasing all of their recommended products.) See the recent Mercola interview with LLMD Dr. Deitrich Klinghardt for more important details.

lilady:

You are reminding me of the movie “Withnail & I”, which has a delightfully bizarre scene where the protagonists meet with their drug supplier, Danny, who offers up this piece of advice:

“I don’t advise a haircut, man. All hairdressers are in the employment of the government. Hair are your aerials. They pick up signals from the cosmos and transmit them directly into the brain. This is the reason bald-headed men are uptight.”

How do you choose what to believe and what not to? I look at both sides of the coin, gathering information from a variety of sources, and going with what I feel, on a gut level, to be correct.

Good lord, talk about missing the point! I gave examples of the more ridiculous conspiracy theories out there that have as much supporting evidence as her New World Order wharrgarble. Not only is she profoundly “hard of thinking”, but she appears to have absolutely no sense of humour.

Well, if Tanya listens to her “gut” that explains a LOT. The gut is notoriously stupid.

– and we all know what the lower gut is full of.

“Well again, Morgellon’s isn’t a disease, it’s a syndrome. It is how the body reacts to the presence of this material which we all have inside of us and the independant scientists who actually have the balls to research Morgellon’s already know a lot about Morgellon’s. They know what it’s made of, how it replicates in the human body and how to slow down that process, to some degree.”

It seems to me that surgeons would have observed “this material which we all have inside of us”; certainly surgeons who perform delicate micro-surgical procedures would be able retrieve a specimen for analysis.

Why would a histopathologist, a surgeon or a medical examiner deliberately hide “this material”? According to Tanya they are all part of the “conspiracy” and lack the “balls” to pursue the science of *MSF* (Morgellon-Specific-Fiberology).

one can only speculate how the people on the Morgellons bulletin-boards react to someone trying to steal their mantle

And mispronouncing it in one’s videos, to boot. What I can’t figure out is where the nanotech was coming from in the 17th century.

Trying the link again:
“So if I want a nano-pollutant scarf where can I find one?”

My curiosity is piqued.

Tanya #114:

self-assembling, self-replicating nanotech that is literally genetically modifying the entire human species

Tanya #144:

everyone, not just those presenting syptoms, has the nano particles responsible for Morgellon’s in their bloodstream, and that it is altering the structure and composition of ALL of our blood

What modifications are being made, and what is the purpose of these modifications?

Hey, just a couple days ago I was watching a BBC news report where it documented how the British government has been taken over by alien lizards in suits made of human skin.

They even had a Doctor on telling all about where the alien lizards were from. Not quite sure of his name, though…

😉

Well, they LOOKED like lizards. Close enough, I’d say.

Do you believe that Queen Elizabeth II and/or Stephen Harper are shapeshifting li(z)ards?

Well, Frank magazine routinely referred to the Canadian Federal election as The Running of the Reptiles.

Coincidence? I think not!

Interesting tidbit. I was trying to remove glitter from my hair (totally unrelated long story), when a strand of hair snapped and the end embedded itself in the skin of my finger.

Hey guys. Pulling those other videos because the one I just made is more to the point, and some of the stuff I talked about before I’m not sure how I feel about sharing yet. I thank you guys because I’ve been wanting to start a vlog on Morgellons for a while now but I’m a major camera-phobe and have been putting it off. You motivated me to overcome those fears and I appreciate it, even if I don’t appreciate the tone of many of the comments here. I hope you will one day learn to approach things you fear or don’t understand with a more open mind and heart.

My new video , which can be found on my YouTube channel, screwedworldorder, is called “MorgVlog #1: PLEASE! Show Some Compassion Toward Morgellons Sufferer’s!” This one’s only 10 minutes (I had notes!). Please check it out.

instead of paying their 13 yrs or older kaiser lab rats in calli why don’t they come to dallas and research on my family.

Out of curiosity Christina, do you believe there is a conspiracy or cover up re Morgellons ?

Perhaps you could contact the Dermatology Department at the University University of Rochester School of Medicine? I’m sure they would be interested to hear from you. Perhaps they could refer you on to someone in your area for tests.

What about detailing your case and presenting it in writing to Dianne Feinstein? It’s quite possible she would be able to advise you as to contacts re an investigation. Just a few suggestions of the top of my head.

This is from last years Morgellons blog entry, which Tanya is still posting comments on.

Tanya asked,

What about Victoria, of the DailyMail article, who devotes so much of her time to helping other Morgellons sufferers get better? I have never seen her speak of conspiracies, yet she is also subject to ongoing verbal abuse and harassment over the internet.

This is one of many videos Victoria has posted on YouTube. http://www.youtube.com/watch?v=8ebzAVGzO-A&feature=endscreen&NR=1

Victoria states @8:18 “I think Morgellons is a bit more than a skin condition. I think it is a bit of a chemical..bioterrorist chemical weapon”. She does not use the word “conspiracy”, but she does seem to think it is a chemical weapon.

Victoria makes the following statements across her videos. She states that she self-diagnosed herself by researching Morgellons on the Internet. At times she refers to the fibers as biofilms, explaining that biofilm surrounds everything. It is on the carpets, in her house, the furniture, anything that is a textile. She states that biofilm does not like Vaseline being put on the skin, nor does it like alcohol, salt, or hydrogen peroxide. Hydrogen peroxide stings when put on her skin, but it is a good test, she says. If you have Morgellons, peroxide stings because it draws out the fibers bringing them to the surface and it creates a white “thing” on the skin. It hurts. If you do not have Morgellons, then hydrogen peroxide will not sting and it will not create a white “thing” on the skin.

Victoria mentions that she is surrounded by supportive family and friends that believe her. Clearly, based on the above paragraph, she is drawing incorrect conclusions. (I will stop calling them delusions for the time being). Such support can be detrimental when it reinforces the patients incorrect conclusions. Her support system is either ignorant as to the effects of hydrogen peroxide, salt and other chemicals, or they are simply humoring her in a misguided attempt to give her reassurance and comfort. Tanya, which do you prefer, bull sh** or the straight facts?

Do you see how Victoria is making incorrect conclusions, mixing facts with fiction? She seems to be taking bits and pieces of information from the Internet, some good and some bad, and blending them into her own version of reality. Many people have sensitive skin that stings when alcohol or salt is poured on it. Hydrogen peroxide causes skin to turn white (maybe someone else here will explain to you exactly why that is), but it does not mean that anyone has fibers or biofilms coming out of their body nor is it a definitive test for any disease. Peroxide causes my fingertips to turn a bit white, but I do not share your condition.

Tanya, many people here have explained to you early on in a very straight-forward, supportive, educational fashion exactly how the conclusions you are making are incorrect. All anyone can do is try and educate you. Personally, I think they have done a damn good job of it. I have learned quite a bit here myself. You took the conversation to another level when you started antagonizing people.

Hey Christina, welcome to the love room! I am sorry to hear what you and your family are going through. In the next installment of my vlog I will be discussing ways I have found to mitigate symptoms. I’m very busy over the next week, so that probably won’t be up for at least a week and a half, but I will post some of the methods I will be covering on here later today. Oh, and it was only 600 thousand they spent!

Tanya, I’m pretty sure the one thing Christina doesn’t need is advice from a conspiracy nut and self-aggrandizing drama queen who isn’t actually suffering from any physical symptoms.

Edith PRICKly…

“isn’t actually suffering from any physical symptoms.”…

Hmmm,

Daily headaches/migraines, circulatory problems, excessive perspiration, joint and muscle pain, joints constantly popping and cracking, debilitating fatigue, insomnia, shedding thousands of fibers daily, digestive issues, persistent “acne” and scalp that was always raw, scabby and itchy prior to moving to an area with untreated water, coughing up brown, streaky goop, blurred vision, fluid coming out of ears (again, frequent ear infections until I moved). So itchy that I would sometimes scratch arms and legs until they bled before moving and making dietary and lifestyle changes. Oh and Edith, I usually bathe for about an hour, twice/day and so “due for a bath” generally means I haven’t bathed in 12 hours. Generally when I start perspiring I do feel like there are bugs crawling all over my head. I also haven’t been able to tolerate most fabrics for many years, as they make me itch like crazy.

When I am out of marijuana (yes, I’m a medical pothead, hahaha), which pretty much knocks me out cold at night, and I am trying to sleep, I notice the itching a lot more, and I know a lot of Morgy’s who say the itching is just background noise until they go to bed.

Nope, no physical symptoms whatsoever!

I am not in severe distress over itching because I do a LOT to keep that under control and this may be why I don’t have lesions (genetics may also play a role). Ocassionally after adding certain things to the bath I do get what look like tiny cat scratches, although that is rare.

Yes, I’m sure what Christina really needs is to be made fun of and patronized by a bunch of science dweebs engaged in an intellectual pissing contest! How about letting her decide what she needs, or doesn’t?

I’ll be back on in a bit with that info, Christina.

I do believe the best use of Fred’s sock would be to cover up Tanya’s webcam so we’re all spared any further vlogorreah…

“Tanya, you are now resorting to foot-stamping.”

Oh, noes!

Hi, Christina

Not going to have enough time tonight to get this all down, so whatever I miss, I’ll post tomorrow.

I’ve known I had Morgellons for about a year and a half. Around the time I was starting to suspect I had Morgellons I was in the middle of relocating to a cleaner, less polluted environment for health reasons. I had been symptomatic for over 15 years and knew I needed to breathe clean air, drink and bathe in clean water and live in a place where I could grow my own food. On a fixed income, living in the city, I was able to afford to rent a 496 sq. ft. apartment with no yard. In a more rural setting, where rent is much cheaper, I am now able to live in a cozy-yet-spacious 2 bedroom house, with a good-sized yard and garden. The great thing about where I’m at now, well, one of the great things, is that my back gate opens to a beautiful saltwater lagoon, which is a godsend when you’ve got Morgellons.

Prior to noticing the fibers, which I noticed in my home before I actually realized they were coming from me, I was already spending a lot of time in hot baths for relief of chronic pain and itchy skin. At the time, I had to use medicated shampoo daily or my scalp felt like it was on fire, and I was always scratching my arms and legs. I suspect the years of regular long, hot baths may have been what prevented me from getting lesions.

Anyways, I noticed that my scalp issues seemed to vanish magically, in about 2 weeks, when I moved and started bathing in and drinking untreated water. So my first tip, if it is feasible, is to bathe in untreated water (ie, no chemicals added, or chemicals filtered out). I do recommend occasionally bathing or swimming in chlorinated water, as I do notice WAY more fibers when I am visiting my mom’s and drinking and bathing in chlorinated water. I normally visit once/month and try to take as many baths as I can while I’m there because of the amount of material it draws out.

I think one of the main tricks to managing Morgellons is keeping the fibers flowing out so that they cannot build up in and under the skin.

Here is a list of things that either draw (external) or drive (internal) out the fibers. Some of this you most likely know already, but I will list everything anyways, even the basic stuff, in approximate order of importance. Of course we are all different, so what is effective for me may not be as effective for you. I find that what is effective for me one day, may do little good the next, therefore, it is a good idea to have a lot of weapons in your arsenal and keep switching them up so the Morgellons doesn’t have a chance to build up a resistance, which it appears to do.

External:

Salt (sea, epsom and table salt are all fine, though I prefer sea salt) and baking soda. Add generous amounts (experiment with varying quantities, I use anywhere from a half to 2 cups of each, sometimes more) to your bath water, use them together or on their own. You can also add a bit of water &/or soap to either and make an exfoliating scrub. Often when I do this I purge extra-long fibers. The longest I have seen was about 7 inches, but some people get foot-long ones!

Dish soap. Use it like bubble bath. Add salt or baking soda for added effectiveness. The 2 brands I have seen the most dramatic results with are Great Value (WalMart brand) Ultra lemon dish liquid and VIP Ruby Red Grapefruit Dish Liquid. Rinse well afterward, as it can leave an irritating film.

Ayurvedic products. Auromere makes amazing poducts for the skin that smell awesome, too. My favourites are their Tulsi-Neem and Sandalwood-Turmeric soaps, as well as their mudbath. Make a paste and use as an all-over body mask for optimum results. I also really like Chandrika soap. Ayurvedic soaps are generally quite astringent, so your skin will look and feel a lot smoother when you use them.

Tea Tree Oil Shampoo. I have tried a few brands with similar results. Very soothing to the scalp and for added benefit, you can add a few drops of tea tree oil to the shampoo, as well as to your bath water. Another essential oil I have had excellent results with is wild oil of oregano, although I would suggest starting with no more than 10 drops, as too much too soon can sting. You can apply it directly to the skin as well, but be careful, as again, it can be painful, especially when applied to the areas where you are seeing the most fibers. Generally after a couple uses, your skin adjusts and you can use more.

I try to bathe twice/day in the winter months when swimming isn’t an option. I get best results when I keep the temperature high and stay in as long as possible. Of course you want to be careful about giving your children hot baths, or using additives that could irritate their eyes. Dish soap baths probably aren’t suitable for little ones. You should also consult with a physician if you have heart problems and are planning on taking hot baths or use a hot tub.

Sun. Spend as much time, with as much skin exposed in direct sunlight, without burning, of course. I used to have tiny bumps all over my arms (keratosis pilaris?) since I was a child and cleared it up completely a few years ago one summer by just spending as much time as possible in the sun. I also know someone with psoriasis who get significant relief from sun exposure. Not only does sunlight improve the condition of your skin (so long as you avoid excessive exposure – use common sense), but it also helps lift the depression associated with Morgellons. I always feel much healthier, happier and more energetic in the spring and summer when there is plenty of sunshine to enjoy!

Morgellons fibers love to hide out in hair, so short hair is best. I chopped all mine off last summer (was about 1/2 way down my back), and feel much cleaner, less itchy and it’s just a whole lot easier to take care of.

What I am hearing is that the ULTIMATE treatment for Morgellons is the far-infrared sauna, which I can’t currently afford, but am planning to buy ASAP. I have witnessed a dramatic reduction in skin lesions in Morgellons patients who have access to an infrared sauna.

Tomorrow I will discuss some things you can do to mitigate the symptoms from the inside, including dietary changes and the use of supplements, as well as how to manage household fibers and take care of your emotional well-being.

Cheers,
Tanya

Don’t you have your own blog Tanya?

“Do you think she is fabricating these beliefs so as to get attention out of loneliness and isolation, maybe a convoluted prank being taken too far, or does she really believe everything she is writing?”

Do you think it is fun to be spoken of this way when you are going through the most challenging time in your life and only trying to help others in the same situation and let them know you’re not alone.

I think not being believed is one of the themes in my life. Learning to overcome the opinions of ignorant people who, out of fear, or lack of understanding, choose to believe I’m lying, rather than open their minds and see that maybe there is truth to what I’m saying. Did you check out that photo I referred to in my post (#262) on the 2011 Morgellons article.

I remember when I decided to press charges against that psychopath, who, for 3 and a half years, raped me, beat me and force me to watch him kill and torture 18 or more animals. Nobody believed me then. A lot of people thought I was “doing it for attention”, which was an incredibly cruel burden to dump on a teenage girl who was already dealing with major post-traumatic stress. Then they hauled him off to a maximum security prison for high-risk sex offenders and suddenly all the doubters were silenced. I recall during the sentencing, in reference to my testimony, the judge referred to me as “honest, almost to a fault.”

Fred, and everyone else who is bashing me here, someday, you’re going to look back at the way you treated me here, and if you have any conscience whatsoever, are going to HATE yourself for how foolish you are being right now. I pity you.

I was under the impression that it was a maximum security prison. Perhaps I was told that to make me feel safer, as at the time I feared for my life. I just looked it up and it was actually a MEDIUM security facility for sex offenders, called Stave Lake Correctional Centre, and is no longer operating. I apologize for the mix-up.

@ Fred:

I’ll speak generally: I do believe that people can be of * two minds* about something. We’ve all had *mixed feelings* wherein we may simultaneously like and dislike a person we know well: our opinion may vascillate. What I’ve found ( by surveying woo-meisters) is that although they may truly be exaggerating their claims and thus, selling a bill of goods to their marks they also _believe_ in their own fabrication and follow their own advice: perhaps after years of telling others you convince yourself as well.

When people work with the seriously mentally ill- who may talk about their delusions- they are instructed to not just go along with the un-realistic belief because there may still be a part of the affected person who doubts and clings to a more realistic idea: speak to that; reinforce that.

On woo-meisters and alt med gurus:
When they sell their ideas and products they are simultaneously selling themselves- they have created a persona as an alternative to SBM consensus and fancy themselves brave new revolutionaries of science or suchlike. Needless to say, this is food for hungry, rapidly engourging egos. If you think about it, it takes a gigantic ego to critique the accumulated work of myriad scientists that took place over decades *especially* if you are not really well-versed in science yourself. It’s easier to decry the Cult of the Expert when you aren’t an expert. It’s a way to level a playing field that they believe is unfair, reflecting at some level their own awareness of their own lack of knowledge- people who feel good about themselves have no need of creating pedestals on which to stand.

It was, actually, a minimum security facility.

@ Fred:

-I have a comment in moderation for you-
but briefly in response: I believe that the answer to your question may not involve an *either/or*.

I think that people can simultaneously believe things that are not logically consistent – obviously when someone has been in emotional turmoil for a long time, this might be exacerbated. I usually write about woo-meisters’ selling products and ideas to their customers but probably also believing in their own ‘wisdom’ at least somewhat: it is self-ego-enhancement as well as self-enrichment. It is thus, multi-purpose manoeuvring and like other emotionally-driven phenomena not *always* entirely under the person’s control. I would be harsher on someone who bases their livlihood on altmed than I would be on a paying customer.

@ Tanya:

Find a new _female_ counsellor: focus on finding ways to deal with your suffering. Talking to an understanding perosn can help you to feel better.

“why am _I_ so unbelievable?”

Maybe it’s because I have been through some really horrendous sh** and people don’t WANT to believe it. It is less scary to believe I am making things up for attention.

I am a talented artist, writer and my photography doesn’t suck, either. I could get lots of attention, if that’s what I was seeking. I am open about my past so that others who are being or have been abused know they aren’t alone and that there is no shame in being a survivor of sexual abuse.

Sorry, again, you are mistaken. From what is online these men at Stave lake came from other institutions and were sent there if they wanted psychotherapy. You of all of us should know there is no point in trying to force psychoanalysis on anyone who doesn’t want it.
As for being insensitive, it is exceedingly difficult to convey tone in a comment. You are reading a lot more into this than is my intention. I am looking for honest answers, not judging you.

Tanya, You should be proud of yourself for speaking out as you did and working with Victim Assistance and other authorities to press charges against this person. That was very brave and your actions and evidence presented may have spared others similar abuse from this person.

I think you can see how important it is for people to be provided with all the facts and necessary evidence so they can make sound decisions. The people here are trying to speak up and help provide others, such as you and I, with important information so we can make other important life-altering decisions.

Hopefully, one day you will gain a different perspective on things and find some peace.

Tanya, this is where I got the information regarding Stave Lake:
PDF]
Sex offender treatment : an evaluation of the Stave Lake …
summit.sfu.ca/system/files/iritems1/7721/b37359678.pdf
As you can see, it is a PDF dissertation regarding the Sex offender treatment program at that institution (which is still opened as far as I can tell although it may house women now). This dissertation was written in 1996. Andreas Schroeder’s book you mention was written in 1976 when Stave lake was a prison logging camp. Obviously its function has changed over the years. Point is, if this prisoner you were speaking of went there for being a sex offender, it appears he would have gone voluntarily (according the dissertation). It strikes me as unlikely that he would have gone to a logging camp (which would have been minimum security) if he were as horrible as you describe.
Some things add up and some things don’t.

Agashem, I have a reply stuck in moderation referencing a current official Government of Canada webpage about pet facilitated therapy that refers to the Stave Lake Correctional Centre as a prison. Also see the definition of the term “correctional centre”. Looks like you may be right about it still being operational, though. I got the impression it had been sold.

The centre probably does host voluntary programs, such as the one you described, but it is, first and foremost, a prison.

It is slated to be closed. Good for you.
Now, let’s get back to more interesting topics, shall we?

“It is slated to be closed. Good for you.
Now, let’s get back to more interesting topics, shall we?”

No, it is closed and it was a prison, and you are the one who seemed most interested in dis-proving those facts. Lol, when proven wrong, they can never just say, “Oops, my mistake, guess I was wrong.” Such inflated egos here.

Fred, I still intend to write you a proper response to #354, as well as the rest of my advice for Christina when I have more time. Oh, and he definitely didn’t go willingly. He was convicted of multiple (can’t remember exact number) counts of sexual and physical assault and sentenced to 2 years in prison, plus probation and an order not to have contact with anyone under 13 (this was because during the case I testified that he told me he molested 2 young relatives). He also was not allowed to live in the same town as his family when released from prison because the judge felt they had enabled his behaviour.

Edith, I completely agree.

I think people in her position are extremely sensitive to criticism, and almost crave people to believe in them. It seems people did not believe her in the past and she was very hurt by that, understandably. Perhaps if someone would have believed her allegations of abuse earlier, and intervened, then she would not have been so exploited.

I think she has dug in deep now with the Morgellons and conspiracy theories. One part of the problem as I see it is that we are not the same people that abused her in the past, but our repeated questioning of her and asking for evidence still comes across in that same manner and is very frustrating to her.

Her beliefs are also probably keeping her from forming positive relationships with people who would support her without encouraging her unhealthy obsessions.

This is writ large. Tanya appears to be on the horns of the dilemma of desiring both the safety of isolation (island living cemented with cannabis) and also ongoing validation, with the former meaning the latter can only be achieved through random engagement. When this predictably doesn’t pan out all that reliably, the indignation kicks in.

Hello, Tanya:
I have counselled people who have dealt with difficult situations including abuse, trauma and serious illness ( now- education and career):
if you are still experiencing thoughts you can’t control about the abuse or the abuser, you should find a female counsellor with whom you can talk. You only have one life, why waste more time suffering? Someone might be able to help you. Obviously the fibres cause you difficulty and memories of abuse cause pain as well: perhaps if you tackled the latter the other obstacles might not be as in-surmountable. Speaking out in court was a very brave thing to do. You stand your ground here against the hard -ss sceptics: you’re not a weak person altho’ you may be burdened with problems from others’ wrongdoings.

I also have enjoyed doing art and writing for a very long time: wouldn’t it be great if you could develop your talents with a peaceful mind? I hope you can. Best wishes.

Edith, you really need to become a professional psychic. You’d make a killing!

Actually, I think you’d be much better at that than me. You could do lint ball readings for other Morgellon’s “patients.”

I am also here to encourage critical thought, …

Tanya, Would you please humor me a bit and do me a huge favor? You correctly noted that I am being sincere and trying to help. Please do the following simple tasks for me.

1. Using your fingers, pluck a very tiny piece of carpeting from your home and film it up close in the same way as you film the Morgellons fibers. You can take the sample from a bathroom rug or other throw rug if you have hardwood floors.

2. Gently pull some of the fuzz off one of your knit sweaters and film it up close as well.

3. If you have access to a clothes dryer, pull some of the lint from the lint trap and film it.

Please upload those three videos to your YouTube page and post a message here to notify me when it is done.

Thank you, I appreciate it!

Adelady, thanks for your suggestions. I have never heard of sorbolene. I am off to the city today and will look for it. The products I have listed draw out the fibers, so they do really keep the itching at bay, everything else I use is, for the most part, fragrance free (I have major sensitivities to perfume, one sniff of most fragrances and I get an instant headache and cough) and hypoallergenic. I might try a week without soap, etc. but I do find the stuff I use helps the itching.

Fred, that sounds like a good idea. Might help convert a few sceptics. Oddly, I have found that if you wet the cotton fibers from a q-tip, they move similarly to a Morgellons fiber, but the fibers I’m seeing, for the most part do not look like cotton. They are plastic-looking and are sometimes iridescent. They don’t seem to match with my clothing, towel or other textile fibers, although if I don’r air-dry, I naturally do get some towel fibers stuck to my skin.

Such an experiment would show the difference between Morgellons an other fibers, so I’ll give it a try. I’m taking a week-long breather from anything stressful or negative, so I’ll do it after that.

Agashem, I apologize for jumping to conclusions. As I say, I was pretty young and pretty freaked out following the trial and I would imagine I was told it was a maximum-security prison to reassure me. I certainly hope the animal-facilitated therapy program was not operating when he was there as he was an animal torturer and killer and even experimented with bestiality.

Denice, I’ve absolutely considered the scenario you suggest. As I explained before, I was very sceptical when I discovered the fibers and would prefer to be delusional than to be infested with manmade, self-replicating nanotech. If I could just take a pill and make this nightmare end, I would. Unfortunately, such a pill would either have to kill me or blind me.

Denice, could you please consider the following as one *possible* scenario: I suffered horrific abuse which drove me nearly to my breaking point. When I saw that my health was declining fast, I took responsibility. I did my own research, revamped my lifestyle and my outlook, and my health began to improve. My experiences made me strong and gave me discernment, so when attacked again, this time in a more covert and sophisticated way, I was able to recognize that I was being attacked, that the intent of this manifestation called Morgellons was malicious.

Being a decent person, and armed with the strength aquired through difficult yet necessary life experiences, I stood up and fought, to the best of my ability, and will continue to do so until the planet is a safe and healthy for everyone and those guilty of these crimes are brought to justice.

I know this is all very hard to swallow, and I’m not asking anyone to believe me. All I ask is that you take the time to investigate this with an open mind, because I believe if you do, you will reach the conclusion that we are all affected by Morgellons, whether we are exhibiting symptoms or not, that whether the research drawing these conclusions was sponsored by the “right people”, the findings are valid, that this is manmade, that we all have it and it is destroying our health and is truly the ultimate violation against all life on earth.

Knowing might not save you from it, but it allows you to take steps toward protecting yourself and your families, or at least lessening the impact. The more aware the population is, the more minds we have tackling this problem, the faster we can identify who is responsible, the motives behind this program, and ways to mitigate symptoms or even “cure” Morgellons.

This is, in part, why I’ve stuck around so long. Scientists read this blog and if I can inspire just one or two brilliant minds to take a serious look at this problem, it’s worth it.

Anyways, I’m not finished writing my recommendations for Christina (or whomever else can make use of them). I’ll post what I’ve got so far for dietary advice, here, and when I finish I will post the entire thing on my blog (click on my name). I also plan to start filming comparisons of Morgellons with other fibers for Fred. Might do a little series of comparison videos (ie, Morgellons VS dog hair, Morgellons VS fiber from sweater, Morgellons VS fiber from curtain). Thanks for the great idea! I will post those videos on my YouTube channel, screwedworldorder

….

Diet/Internal

Several years before I had even heard of Morgellons, I made one change in my diet that I feel is a big part of why I have not manifested skin symptoms as severely as some. It has certainly resulted in a HUGE decrease in the severity of my muscle & joint pain, as well as the headaches. It has also completely eliminated my cravings for MSG-laden junk food. That step was the removal of MSG, as well as other potential sources of free glutamate (hydrolysed proteins, modified starches, artificial and natural flavour, seasonings, spices, etc., etc.).

Basically, I began to eat only foods whose ingredients I could recognize and would use myself in my own cooking. I soon began to understand that if the “natural flavour” in a product were, say, onion powder, or vanilla extract, the label would reflect that. When you see “natural flavour” (or some of the other “ingredients” I listed, above), there is something there they don’t want you to see. Pepsico (Frito-Lay, Quaker, Tropicana, Lipton, Naked Juice, Sobe, Aunt Jemima, Aquafina, etc.) uses aborted human fetal tissue and rat DNA in the manufacture of their flavourings. Babies and rodents are natural, right?

I am not someone who does well with drastic changes overnight. I am still gradually making changes to my diet. Aside from eliminating unrecognizeable and unnecessary ingredients from my diet, I also strive to eat more whole, unprocessed foods, and more organics, as well as more raw food. Affordability has been an issue in the switch to organic foods which is why, last year, I started learning how to grow my own food, which is practically free.

Currently my kitchen table is covered with egg cartons and trays full of sprouting veggies. Nasturtium, dill, kale, pak-choi, lettuce, parsely, mustard greens, fennel, 3 varieties of basil, garlic chives, green onion, sage and coriander. In a few months we will have more produce than we can deal with and will probably have to sell some. I plan to do a lot of juicing, too. I’m still enjoying some salad greens and herbs that survived the mild winter.

I’m also learning about edible wild plants and weeds. Turns out the dandelion, plantain, wood sorrel, self-heal, peppergrass, chicory, lemonbalm, burdock and clovers growing wild in my yard are edible, too, and I’ve started incorporating them into my diet as much as possible.

The gardening and foraging also provide exercise and sun-exposure, which are so important for those with Morgellons. I also think it is wise to spend as much time outside as possible, as we are constantly shedding the fibers and so the more we can shed outside, the easier it is to keep household fuzz under control.

….To be continued….

Morgellons Disease Reversal

How long have you had Morgellons symptoms?

The answer really does not matter. What matters is reversing them. We have found a way to eliminate your Morgellons symptoms in about 4 weeks using a natural mineral. What might you expect?
This is what you should expect;

week one;

Your energy begins to return
Your brain-fog begins to evaporate
You can see better
You can think clearer
You see “debris’ leaving your body

week two;

If you have lesions, they begin to harden around the edges
The biting and scratching begins to subside
Your movement in your scalp starts to go away
You notice less fibers
The black specs disappear

week three;

Your lesions harden even further, some begin to fall off entirely
The biting and scratching is almost gone
Say good-bye to your depression
Your mood improves

week four;

Your lesions have mostly fallen off and do not return
Your clarity of thought astounds you
Nearly all of your Morgellons symptoms are gone
You life is your own again
You feel like ‘you’ again

Is this a pipe-dream, or is it real?

We have been helping Morgellons sufferers for over 5 years and those who stayed with the program and followed the instructions are mostly symptom-free now. Once you obtain this level of relief, you seriously reduce how much NutraSilver you take to a minimum of about 15 drops, twice per day.

That’s it! You are done! Now it is time to return to your normal life without being accused by the medical profession of being delusional, without the feeling of hopelessness and without the debilitating brain-fog that stole your life.
Congratulations! Your Morgellons nightmare is over!

NutraSilver, in FDA-certified independent lab test has shown to kill every pathogens we have tested both quickly and safely. WE are so sure that NutraSilver will reverse your Morgellons symptoms, we guarantee it for 60 days from the date we shipped it to you. No questions asked. Why doesn’t your Doctor of Pharmacist offer such a guarantee? You know the answer and so do we. End your Morgellons suffering now. There is no need to suffer even one more day.

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