GoFundMe is frequently used by patients to pay for quackery. How can its policies be changed to make misuse of the platform more difficult?
Federal “right-to-try” legislation was passed and signed into law by President Trump over a year ago. Advocates promised that lots of terminally ill people who were dying then would be saved by having the right to “try” experimental therapies outside of the context of clinical trials. That has not happened. This should come as no surprise, because right-to-try was never about getting experimental drugs to dying patients. It was always about weakening the FDA and making money.
Steve Salzberg proposed, in essence, bypassing phase 3 trials for a COVID-19 vaccine. It was a very bad idea for a number of reasons. To his credit, Steve later admitted his mistake.
It’s finally happened. A “right-to-try” bill is coming up for a vote in the House of Representatives. It’s been slightly modified from the version that passed the Senate last year to make it less patient-hostile, but it’s still the same cruel sham that right-to-try has always been.
Right-to-try is now the law of the land. Unfortunately, it’s a law custom-made for the unethical who don’t mind taking advantage of the terminally ill.