Categories
Clinical trials Computers and social media Medicine Popular culture

Crowdfunding to pay to be a research subject in a clinical trial: The case of Lily Wythe [UPDATED 1/23/2020—see addendum]

Lily Wythe is a teenaged girl with a deadly brainstem cancer whose case has made international news because of her family’s crowdfunding to get her into a clinical trial. Should investigators be allowed to fund trials this way?

Categories
Cancer Clinical trials Medicine Quackery

Clínica 0-19 and IDOI: Not making DIPG history in Monterrey, part 5, IDOI-1

Drs. Alberto Siller and Alberto Garcia are at it again at Clínica 0-19, peddling a dubious case series touting their DIPG treatment. Let’s just say that it does not demonstrate that their treatment is better than existing treatments; i.e., not very good.

Categories
Cancer Medicine Popular culture Quackery Skepticism/critical thinking

Annabelle Potts tragically dies. The quacks at Clínica 0-19 didn’t save her.

Annabelle Potts was a girl with the deadly brain cancer known as diffuse intrinsic pontine glioma (DIPG) whose family was victimized by quacks. Unfortunately, that’s not how the media is reporting it. As is frequently the case, Annabelle’s story is being presented as one of triumph, and the quacks who treated her as legitimate experimental therapy.

Categories
Cancer Medicine Popular culture Religion

Roxli Doss: A deadly brain tumor shrinks to undetectable without quackery

Roxli Doss is an 11-year-old girl from Texas diagnosed with the deadly brain cancer DIPG. After radiation therapy, her deadly cancer is undetectable, no alternative cancer cures sought or used. What happened?

Categories
Cancer Complementary and alternative medicine Computers and social media Integrative medicine Naturopathy Quackery

How online crowdfunding supports cancer quacks

Patients with cancer frequently use online crowdfunding to pay for trips to quack clinics. The Good Thinking has undertaken an investigation that is the first to suggest the extent of the problem. The question is: What to do about it?