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Clinical trials Computers and social media Medicine Popular culture

Crowdfunding to pay to be a research subject in a clinical trial: The case of Lily Wythe [UPDATED 1/23/2020—see addendum]

Lily Wythe is a teenaged girl with a deadly brainstem cancer whose case has made international news because of her family’s crowdfunding to get her into a clinical trial. Should investigators be allowed to fund trials this way?

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Computers and social media Medicine Popular culture Pseudoscience Quackery

GoFundMe and the problem of crowdfunding for quackery

GoFundMe is frequently used by patients to pay for quackery. How can its policies be changed to make misuse of the platform more difficult?

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Cancer Computers and social media Homeopathy Medicine Quackery

How online crowdfunding supports cancer quacks (part 2)

A new study by Jeremy Snyder and Tim Caulfield shows how much money is raised by GoFundMe and other crowdfunding sources to support quackery. It’s a lot of money, which is unsurprising to Orac, given that he’s been writing about how crowdfunding is “baked into” the business model of cancer quacks since he discovered Stanislaw Burzynski a decade ago.

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Complementary and alternative medicine Computers and social media Medicine Popular culture Pseudoscience Quackery Science

Crowdfunding for unproven stem cell treatments: Taking advantage of the generosity of strangers to pay for quackery

With the rise of quack stem cell clinics, there has been a rise of crowdfunding campaigns to assist patients in paying for expensive stem cell treatments of unproven efficacy. Unfortunately, as a recent study shows, these crowdfunding campaigns nearly always oversell efficacy and ignore potential risks of the treatments, while making powerful emotional appeals.

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Cancer Clinical trials Medicine Politics

“Right to try”: A miserable failure thus far

I’ve frequently called “right to try” laws that are popping up in various states like so much kudzu, to the point where 31 states have passed them in a little over two years, an amazing pace, a cruel sham, given how incredibly unlikely they are to help a single patient. Basically, state-level right-to-try laws are […]